Szczęście, które długo kazało na siebie czekać… Nasza wspólna droga jest pełna trudności i przeciwności, a jednak wciąż nią kroczymy w nadziei na lepsze jutro! Na początku zawsze pojawia się euforia. Przyjście dziecka na świat całkowicie zmienia perspektywę, sprawia, że życie zaczyna toczyć się ...
Ratunku – nasz malutki synek jest śmiertelnie chory! Mięśnie Igorka słabną i powoli umierają… SMA, rdzeniowy zanik mięśni – 3 litery zniszczyły nasze życie, przynosząc tylko rozpacz i strach. Nie umiemy sobie poradzić z tą tragedią. Wciąż płaczemy, ale wiemy, że nie ma czasu do stracenia – chorob...
Śmiertelne zagrożenie rośnie. Umieramy ze strachu o życie Kajtusia. Jest jeszcze taki malutki, taki bezbronny… a przed nim być może tylko kilka lat. Musimy go ratować, zanim choroba zada ostateczny cios! Świadomość tego, że nasz synek będzie umierał w męczarniach jest dla nas porażająca. Odkąd u...
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SMA has silently started weakening our daughter. The illness wants to destroy her in spite of all the efforts that we make to prevent this process - and it progresses very quickly. We're scared to stop keeping an eye on our little Tosia for even a minute in a fear of the worst...____ The clock co...
We are terrified… We are at the hospital with our son. His condition is deteriorating and all the nightmares are getting real. The doctors said that my son's chances are shrinking. He's dying. He needs a liver transplant as soon as possible but it's not as easy as it seems. Fabian’s heart needs s...
Our son suffers from the spiral muscular atrophy SMA 1- the most agressive type. His muscles are slowly dying! The only thing that would rescue him is the most expensive medicine in the world. He's one year old child and his time is ticking. From the bottom of our hearts, we ask you to help our c...
URGENT! Franio's heart is in mortal danger! Without surgery, this 3-year-old boy will die! No cardiac surgery center in Europe can help Frania anymore. Professor Hanley and the hospital in Stanford in the US remained - the same one where other Polish children with sick hearts got a chance to live...
HELP! Wiktor has malignant brain tumor! We are starting our dramatic fight with time to fight for his life. We have only 2 months to gather around 8 million złotych - this is how much treatment in the United States will cost, the treatment which gives as much as a 85% chance to help Wiktor comple...
September the 9th - this day began like many other days. Nothing foreshadowed the tragedy, which we found out about few hours later... The doctor informed us of the results of the genetic tests of our daughter. Diagnosis - SMA1 - spinal muscle atrophy type 1. This disease takes away her strength ...
