We fight for the life of a child who will DIE in front of our eyes without our help… Tosia – a little girl - is in deadly danger… A cruel disease steals her life day after day. Children with SMA – Spinal Muscular Atrophy, without treatment, die before their second birthday… We are begging for your help – Tosia doesn’t have to be among them!
It's not only a fight for medicine, it’s a fight for Tosia to live. That’s why, please – read the girls’ story, share and help – SAVE A LIFE! Indifference means only one thing – THE END
Nothing foreshadowed such a terrible disease. The pregnancy was perfect, the delivery took place without any complications. All we had to do was to enjoy a healthy, beautiful daughter. However, something was wrong. Tosia became less and less energetic, her legs were lying limp, she did not raise her head...
We decided to check it all. The neurologist confirmed our fears and urgently directed us to the hospital. We were admitted to the ward, where our child underwent a series of tests, including genetic ones.
We learned that Antosia suffers from spinal muscular atrophy. We remember the envelope with the results, the words of the doctors, their voices, facial expressions. We heard these 3 letters - SMA. Our hearts have broken into millions of pieces…
This fatal disease steals Tosia’s life, day after day, muscle after muscle. SMA is a rare genetic disease. Tosia has type1 - the worst form. Lack of protein in the body causes the death of neurons responsible for muscles’ work. And muscles are everywhere –walking, eating, speaking, breathing depends on them. The patient stops moving, talking, swallowing ... Then the breath disappears. The sick die because they suffocate. Everyday is a fight for our child's life.
Medicine, however, is no longer helpless! There is a way to save Tosia's life. There is a rescue! This is a new, innovative gene therapy, carried out in the United States. The treatment changes the child's genetic code. The body begins to produce protein, necessary for muscle work (due to which Tosia’s muscles die). However, the treatment costs an unbelievable amount - 2.5 million dollars. Tosia's life costs so much ... It's the only chance that our child will live.
We have 2 choices - fight and ask for your help, a miracle ... or give up. In the fight for Tosia's life, we will never give up! That is why we are asking for your help ... We believe that with the help of people with good hearts like you, we will be able to save her life ... We keep saying to her "It will be alright, sweetheart". Please, save our child!