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Amelia's hand could be operated! But there is fleeting time to help our daughter... We have been searching for help and finally - when it could be possible - the big obstacle has appeared. Surgery cost is very high, and we are not able to cover for it ourselves. However, we hope forour daughter tohave a chance of being independent, to have a normal childhood and adulthood. We would like her not to ever feel worse than others, so we would like to ask you very much for your help... We believe that with you it will be possible to "fix" our daughter's palm!
It should have been our second happiest day in our life. Nobody supposed that it would become the worst one... We expected Amelia's birthday as impatiently as her older sister's birthday. It was a fear - of course - but nothing could be bad! The pregnancy went smoothlyand relying on all examinations we believed that Amelka would be born quite healthy. Just after my daughter caught her first breath, I felt a strange tension among doctors and nurses. Somebody said that there was a problem with herhand... I did not want to believe that. What was the problem? It has to be a mistake! - I said. There was unexpected blow for us, for which nobody had us prepared. The hand of our just born baby was not shaped correctly. Her palm was smaller than the other one, fingers were not shaped and additionally connected together - with no possibility to catch anything. In that time the whole joy of first moments of parenthood was taken away and it was replaced by a huge fear, what would happen next...
We thought that nothing worse could happen, but then was another blow. On sixth day of her life Amelia was infected by serious bacteriaThe situation got worse - feared about our daughter's life. We had not processed the first shock and we had to go to the hospital. Why this all happened to us, to our little baby? We could not understand that...
Finally, the bacteria was defeated and we thanked doctors for saving our little baby's life. Then we could focus on how to save her hand. Unfortunately, we were left alone without any guides regarding to further treatment. We started to look for any information relating to hand defects - to help our daughter - but even in the Internet we did not find a lot of information connected to this topic as hand defects are rare ailments. Amelia has the symbrachydactyly of left hand. Since her birthday we have cried for many days. We wished it was a nightmare and we wanted to wake up...
As each parent would like for their child we wished forher a beautiful life, without pain and suffering. It is hard to accept the fact that our child has a deformed palm and she is not able to catch a bottle or a toy and since the beginning of her life she will struggle more than other children at the same age...
We have attended many meetings with hand specialists in Poland, but they were not able to help. Finally, we found out that world known children orthopedist would come to Warsawin April , who specializes in surgeries of limbs birth defect. Finally, we had an appointment with Dr Paley which was a great opportunity for us!
During the appointment we found out that Amelka's palm could be reconstituted with a success. Dr Paley will perform the surgery of palm reconstitution, based on a method developed by himself, in a way that Amelka's hand will be functional! After the surgery Amelia is going to start to work with physiotherapist who will teach her how to catch different things. The surgery could happen in the USA and the best time for it is until 14th month of Amelia's life so we do not have a lot of time. After this appointment the hope came back, and we again started to believe that our child will have normal future life. However, one month later we received a cost estimation, which shocked us... The cost of the surgery and after surgery treatment was calculated as 94k USD. Unfortunately, we are not able to collect so much money and this is not the final cost of treatment. Additionally, time is our enemy... The chance for a normal life of our daughter has its own price and we cannot effort it as we do not have enough money. Our helplessness is the worst thing for us...
We look at Amelka, our brave girl, who still laughs, even when she does hard exercises and she needs to do a lot of exercises, even they are unpleasant. If she does not, her backbone will twist itself due to incorrect way of using her hand. Usual crawling is for Amelia a big advantage. Now she is starting to walk herself, climb everywhere and she oftenplays. She would like to hold objects using her hand, but she cannot. She touches various things and she would like to catch them but with no effect. She does not know why her hand cannot function properly, why her sister could catch a ball using both hands, but she does not. We are aware that in the future it will be more difficult. Also, daily activities which we do not even think about as catching a toy, buttoning, tying hair using a band, cycling or tying shoes are impossible to do using only one useful hand.
We have received a chance help our daughter, with normal functionality like other children have in her age, we need to do everything to take the chance. The only condition is a huge cost of the surgery, so we would like to ask for your help... We know that we need help of hundreds of people with good hearts, to save our daughter's hand but we could not forgive each other if we do not make the attempt.
Please, help us. We can make it with your help!
Amelia’s parents: Agnieszka and Paweł
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