Serduszko Amelki chce dalej bić – III etap
operacja zagraniczna serca w Munster III etap - Niemcy
Ends at: 03 March 2017
Operacja wady serca w Munster - II etap
Operacja wady serca w Munster - II etap
Dotarła do nas na najgorsza możliwa wiadomość...
Rodzinie i bliskim składamy najszczersze wyrazy współczucia...
Place: Glogow, Lower Silesia. Our Goal: Third stage of operation performed in Munster ;Germany Condition a heart defect: A heart with one ventricle. Aatrioventricular septal defect. Departure of arteries from right Aatrioventricular. Transposition of the great trunks narrowing of the pulmonary trunk. Common auricle. Amelka's heart wants to beat away- III stage
We had no chance, but so far we have to battles in favour of Amelka. To secure our daughter's heart we need one more operation. It is the most important one. Only then we will be able to say that we won the battle with death over our child.
We find out that our daughter has a heart that does not function normally in a 22 week of pregnancy. After a few days it occurred to us how serious the defect was and how hard it will be to make Amelka to live. What do you feel in a moment like this? Certainly a breakdown, but not big enough to accept a second solution that was offered by doctors. The solution was termination of the pregnancy. For us it was a total abstraction. Yet we already loved her, it was our child The fact that she was supposed to be born sick was only like an extra injection of love that we received. The consciousness itself that one knows about the child's condition is not a good enough reason to give up. The will to fight for our child gain the upper hand. Since Amelka will be born so very ill, we have to wait for her a hundred times more prepared than all the other parents. The race with time began. We wanted to secure our most precious treasure from every side. Hundreds information from the Internet, thousands of conversation and phone calls. The biggest support came from parents of children suffering from heart defects. Thanks to those people we got used to the thought of Amelka's illness, at the same time heaving hope for a miracle. Days were passing and the miracle did not happen. Subconsciously we felt more and more that this time it will not happen. On the seventh of September 2015 it all became clear. After two days of relative stability Amelka started dying. It was than we heard the most horrific words in the world. Ductus Arteriosus is closing. Your child will not be survived by any heart surgeon in the world. We do not believe in miracles. After two days her relatively stable condition collapsed. She became hypoxic and suffered from multi organ respiratory and circulatory failure Doctors did everything they could to save Amelka. They saved her life and pre-qualified her to the operation. Unfortunately as a new bon baby she was too weak and instead of planed operation a two-staged hybrid operation was performed. The door of an intensive care unit separated us from our daughter. We could not be with her for the whole time. We felt she needs us even to stroke her head, take her tiny hand. After inserting a stent in a Ductus Arteriosus came another collapse. This time it was really bad. Doctors were coming to see if Amelka is still alive. She did not give up and was breathing constantly. We were transferred from Warsaw to Wroclaw. Here came another bad news. Doctors decided to do a tracheotomy and support her breathing though a ventilator. Doctors told that they will not manage to put Amelka of a ventilator and she will die soon. We only now from time perspective know how wrong they were. After two months and another sentence that we even stopped counting we took daughter home without a ventilator in a good condition. It was that first miracle that took place in our live. Another came almost after a moment. We will never forget the day when Amelka was taken to the operation table of professor Malec. She was given a second life that day. Tears of joy after such a drastic beginning At last first night without fear that in the morning Amelka will not be here with us. It is hard to express with words how much joy we drew from a simple feeding with bottle. After the surgery our little daughter quickly started to get better.
We were making up for the lost time and we were enjoying every day. Today we know that everything what happened, all our journey has made the love for our daughter easier, strengthened our determination and confirmed us in our conviction that it is worth to fight. Amelka got to Professor Malec and thanks to this she is with us today.
To close the stage of fighting for her life once again an enormous help is needed. This time we can once and for all close the chapter of fighting for Amelka's live. The third stage of correcting her heart that can secure our daughter;s life is our biggest dream and only solution at the same time. We are asking for this chance. Professor Malec has allowed our daughter to be reborn. Now he only has to finish the opus he started- the work of life. Started on: 20 September 2016 Finishes on: 5 March 2017