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Pomóżmy opłacić badania genetyczne, aby Maks zakwaifikował się do programu leczenia

Maksymilian Mackiewicz-Krzos
Fundraiser finished
Fundraiser goal:

Badanie genetyczne WES

Entity submitting the fundraiser: Fundacja Dzieciom ZDĄŻYĆ Z POMOCĄ
Maksymilian Mackiewicz-Krzos, 13 years old
Wola Pękoszewska, mazowieckie
polineuropatia aksonalna CMT
Starts on: 10 April 2018
Ends on: 03 August 2018

Fundraiser description

W styczniu 2018 Instytut Chorób Rzadkich w Warszawie ogłosił nowo otwarty program eksperymentalnego leczenia CMT-jest to szansa na leczenie Maksa. Jednak, że bez rozszerzonej diagnostyki genetycznej Maks nie może zostać zakwalifikowany ani do tego, ani żadnego innego programu na świecie. Dlatego proszę Was o pomoc w sfinansowaniu badań genetycznych w Warszawskim Zakładzie Genetyki Medycznej.
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