Lucek, Lucjan. He is still so tiny, while lying and playing with his fingers, he does not suffer. The bone breaks suddenly, it is not known when. Pain at the time of fracture, lumps appear. Yet even so recently on prenatal studies I counted with the doctor's son's fingers, I knew the length of the femur, nasal bone, I knew how many times his heart beat. But no one paid attention to the tibia.
"Mom, do not worry, everything will be okay," I heard from the doctor when I noticed that one leg was tucked underneath Lucjan. Mandatory hip tests in the second month of life and subsequent calming words from orthopedics - there is no reason to worry, it will straighten itself. All in all, Lucek was moving his leg, maybe I was too sensitive? And then there was a bulge, such a lump. The doctor we went to immediately sent us to the Admissions Board, not to mention his fears - he thought it was cancer. Simple association. When we later learned what he suspected, it was hard to shake - if our baby had cancer, would we still have a chance to fight him?
X-rays showed something completely different than cancer - the bone was broken. When? How? Nowhere has fallen, so how can a bone be broken? Did it break? - This question seemed absurd, but as it turned out later, in Lucjan`s disease that is - the bone itself is broken and cannot grow. Then it would not happen to me, not only me - the doctors, too. I thought maybe his leg was broken at the birth, the doctors went straight to the associations: the suspicion of cancer appeared a second time. On the next day, a consensus was reached and a diagnosis was made: a Congential Pseudarthrosis of the Tibia (CPT). In Poland, 3 children are born with such a defect. Appears prenatally, is associated with onerous neurofibromatosis (neurofibromatosis). The bone breaks and a pseudo-pond appears in this place. More fractures lead to abnormal development of the leg, resulting in healthy growth faster, and the one that continues to break - slower. When the difference between the feet of several centimeters grows to a dozen, the child cannot walk. Then he wears special boots on the platform, and when he does not help, he can hit the stroller to be able to move at all. But that's not the end - the darkest scenario is the amputation of the leg - we are most afraid of it.
After several visits to small footprint specialists in Poland, we have lost hope that anyone will help our child. We were sent from the office to the office, the doctors spread their hands because they did not have such a case. We sincerely honored, not everyone must know everything, but we stayed with it. We were hoping someone would say, "We cannot help but there is someone out there who can do it." Such words never fell, but this "someone" we found ourselves. Previously, we were determined to treat in Poland. The media was loud about the baby, which with the same defect as Lucek was operated in Poland, with great effects. I got a number for Mom, I called. I put off the phone with a feeling of injustice and fear - I already knew that in Poland rather no one will help. We wanted to make sure, so we went to Poznan, but at the same time we sent a medical record of our son to Dr. Paley to the USA. The first answer came from him - he wrote that the treatment used in Poland gives less than 50% chance of Lucjan cure because there is no access to morphogenetic protein responsible for bone growth, which is key. Polish doctors know the method of Dr. Paley, they can help to make the union after the break, but not to stop the leg breaking. And the more operations, the greater the risk that the next will not help that amputation may become necessary. Dr. Paley has developed a method that gives 100% recovery, 100% effectiveness, which can be confirmed by parents of children from around the world, also from Poland. Dr. Paley presented a plan that will fix the leg, save it from amputation, from asymmetry, and in Poland we heard "we can try". We do not diminish the merit and skill of Polish doctors, but with 100% chance and 50% chance that someone in our place would doubt what to choose?
In half a year Lucjan will finish the year. Our celebration will be a successful gathering, because the amount is huge, and the best gift for him will be a successful operation. We have a half year to raise money for surgery, it is not money that we can put aside, earn, borrow. Even if we sold everything we had, they did not eat, they did not have any spending, we really cannot. Luckily, who do not have to ask, and in such a difficult situation they can handle themselves. We do not belong to them, but our son loves life. For starters, we have to have $ 10,000, then within a few months get the rest. We want to give our son a painless life without a wheelchair without amputation. And we must act now, until the legs are of the same length, until there are few breaks.
If we manage to collect money in time, then our son may not even remember the operation, the whole stress. But we will never forget that you gave us so much good for Lucjan. Please help us, do not go indifferently next to our son.