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Marysia - our Maryś, Mary - is five years old. For two years her second home is a hospital in which she is struggling the hardest battle of her life... An aggressive malignant tumor attacked our little daughter. Marysia has a chance to win with illness, but needs your help! We do not have much time - expensive immunotherapy should start in January 2019!
Tumor in her belly Marysia called Mr. Pebble. When asked about our daughter why he woke up again, we are not able to answer. We said that when Marysia laughs a lot, then Mr. Pebble will take his suitcase and we will be able to get rid of him, he will finally leave and leave her once and for all. Then she will be healthy. She is so brave - after all, she smiles a lot. Now Marysia is in the middle of strong chemotherapy, very toxic, which is accompanied by many complications ... Chemistry, hospital - Marysia has already survived. This is her second fight. More difficult. Recurrence. Cancer returned after a few months.
Mr. Pebble is actually a neuroblastoma - a very malicious and dangerous cancer. In Poland, it attacks about 70 children a year. In the worst dreams, we did not think that our Mary - this wonderful and sensitive girl who loves to draw and cut - will one day be among them...
It started almost two years ago ... November 18, 2016. The day of the diagnosis of Marysia, which we will never forget. Before that day was a normal life - we had to go to the mountains, Marysia had the first time to ski ... It never happened.
Abdominal pain, vomiting, feverishness, fatigue ... After the ultrasound, which Marysia had done at the clinic, we were told to go to the hospital immediately. What was supposed to be an infection turned out to be a deadly tumor ... Instead of going on vacation, we went to the hospital. And in it - more research, tears, thousands of questions that were not answered. And then the diagnosis - sympathetic embryo, neuroblastoma ... 3rd degree in the IV-degree scale. High-risk group due to the strong amplification of the N-MYC gene. This is the strongest marker of bad prognosis...
Time slowed down, adapted to hospital life, there were no days of the week, no month, there was only chemistry, research, a few days of break and so on and on. Marysia's treatment lasted for 1.5 years ... Everything that was before her illness ceased to matter. We have subordinated everything to being with her in the hospital and supporting her strongly. Our daughter underwent eight cycles of chemistry, tumor removal surgery, megachemia, autograft, radiotherapy - sixteen cycles of radiation - and immunotherapy with aGD2 antibodies. These concepts, once alien, are today an integral part of our lives...
On February 8 - Marysia finished her treatment on her fifth birthday. Test have confirmed that she is clean. Cancer - Mr. Pebble - went away... The longed-for normality came - home and four of us: us and our two little daughters, Marysia and her little sister Irenka. Unfortunately, the normality lasted three months ... We would leave everything to continue. The first check-up showed a recurrence.
When Marysia heard that she had to return to the hospital, she did not say anything for a moment. And then she came up to us, hugged us and said she loves us... It's hard to talk about it without tears. She is only five years old, and she has survived more than any of us ... an adult would give up. Marysia knows she has to show up, fight for Mr. Pebble to finally leave.
The daughter is already after 2 cycles of chemistry, which allowed to stop the progression of the disease ... However, they did not cause regression. Marysia is also after the second operation - unfortunately, due to the location of the tumor, it could not be completely cut ... Before Marysia, MIBG therapy in Gliwice and what is the final stage of treatment, what we urgently need money for - immunotherapy. It stimulates the immune system to fight cancer cells. Increases the chance that Marysia will recover by as much as 20%! It's a huge value! In the struggle for the highest value, which is the life of our child, every promil counts...
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