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Martusia is dying. We have a time until December 27th to give her the chance for life!

Marta Przybylska

Martusia is dying. We have a time until December 27th to give her the chance for life!

451 179,55 zł ( 116.86% )
21580 donors
Goal:

Biological drugs medication in HCA Clinic in London - lifesaving URGENT!

Fundraising organizer: Fundacja KAWAŁEK NIEBA
Marta Przybylska, 8 years
Rakowiec, pomorskie
Inoperable brain tumour: Diffuse Intrinsic Pontine Glioma (DIPG)
Starts at: 16 December 2017
Ends at: 24 December 2017

Result

17 kwietnia Martusia zamknęła oczy po raz ostatni. Zostawiła tak wiele zranionch serc... 

Iskierka nadziei tliła się do końca, nawet wtedy, gdy już wszystko wskazywało, że Martusia odchodzi. Zasnęła na zawsze i wierzymy, że jest teraz w świecie, gdzie nie ma bólu.

Dzięki Waszej pomocy ta mała, dzielna dziewczynka mogła stoczyć najważniejszą w życiu walkę. Leczenie pozwoliło wyrwać śmierci kilka miesięcy, które były tak cenne dla całej rodziny. Wygraliśmy. Swoje ostatnie tygodnie Martusia spędziła wśród najbliższych, którzy starali się przychylić jej nieba.

Martusiu! Już zawsze będziesz w naszych sercach.

Rodzinie i bliskim składamy najszczersze wyrazy współczucia.

......

Styczeń 2018

Martusia jest już po pierwszym cyklu leczenia, które mogło rozpocząć się dzięki Wam!

Zdążyliśmy, udało się! Dziewczynka z rodzicami właśnie wróciła do domu po pierwszym cyklu terapii, która jest dla niej ostatnią szansą. Wszystko idzie zgodnie z planem, chociaż ze względu na stan zdrowia do leczenia Martusi musiał zostać włączony lek Avastin.

Leczenie będzie długotrwałe, ale wierzymy, że się uda! Martusia najlepiej czuje się w domu, dlatego cieszymy się, że w przerwach terapii może być w otoczeniu, które zna, z mamą, tatą i rodzeństwem. 

Jeszcze raz z całego serca dziękujemy - w imieniu Martusi, jej rodziców i swoim. Mamy MOC!

Description

The time is ending for our daughter.  DIPG inoperable brain tumour is taking her away from us......   Hope, it is still the only thing which we have. We hope that we will manage to use the last chance on time – it is the biological drugs medication in London. The treatment is starting just after Christmas, on December 28th!   It is so short time to raise the huge money – price for our daughter's life.... Marta was planned to participate in the special clinic trial in Poland, but she has been debared from it because of the disease progression. We beg for help, for longer survival of our daughter, for the hope that Martusia is recovered somewhen...

Marta Przybylska


We've been fighting with that DIPG since July last year.  In one moment the disease took Martusia away from her lightsome childhood and it brought her to the hospital, filling our life with pain and fear.  Recently our daughter said : „ Mum, I don't want to be an Angel and to come back to heaven. I'll be missing you so much”....   We cannot allow her to pass away and we have to use all chances which medicine can offer us. However, we cannot manage it ourselves to collect so huge sum in such a short time. Please, help us with it.


I've been afraid about Marta's life since the 1st birthday and it was not a simply mother's and father's fear about their child safety. Somewhere inside I felt that there is something life-threatening. Finally, I've found out that the mother's intuition doesn't let me down. Unfortunately...


Martusia was born 5 years ago as a healthy strong girl. She started to speak and walk very early. She was charming everybody around with her beautiful smile. She was amazing with her extraordinary brainpower and sense of humor. Nothing foreshadowed such disaster...

Marta Przybylska


The change came in one moment. The first symptoms, such as uncontrolled tantrum attacks, occured when she was 3 years old. We though it was simply”kindergartener's outbreak”. Further symptoms were appearing, anyway: difficulties with walking (she was afraid to go upstairs)and imbalance. When we saw her „half smile” (the left side of her mouth was just limp) we were sure that it's something very bad.  However, we didn't suppose that it's caused by the deadly enemy...


The detailed diagnosis was made but the neurologist saw nothing dangerous and recommended further diagnisis and follow-up visit in 3 months. However, Marta was worse and worse. She couldn't keep her balance and the lopsided smile was very anxiousness for us. We went to the hospital. There were various suspicions but they were eliminated one by one after further  diagnosis. Finally, CT scan was recommended. I felt inside that there is something in her head. I prayed God it's curable... CT scan was performed and the doctor said something which was our biggest fear – It's a tumour. I felt benumbed in a moment and my horrifying cry „ No, I beg NO” could be heard all over the hospital.

Marta Przybylska


At night the ambulance took us to the Oncology Department. MRI was performed on July 25th., 2016 and its outcome „killed” us again  -  Diffuse Intrinsic Pontine Glioma (DIPG). It is the worst from all childrens' tumours.  Statistically, average survival time it's 6-9 months... Then I knew that our daughter was dying!

We started a dramatic fight for life. We decided Martusia to be treated in the Children's Health Center. I never supposed to watch the „oncology world” from the inside. However, we started to be a part of it. The treatment was started: chemotherapy- tears,suffering, doubts,  radiotherapy- tears again. All the time we hoped that the terrible fate would be changed and the disease could be stopped. We sent the medical documentation to many Medical Centers and Clinics being specialized in DIPG treatment almost all of the world. How many time we received the answer: „We are very sorry but we cannot help you”? - I even cannot count it.

Marta Przybylska


After the 1st radiotherapy the tumour became stable for 9 months. However, the progression was found in August this year...  Her clinical condition has been dramatically worse, left-side paresis and bigger imbalance occured and sudeenly our daughter couldn't stand herself on her legs... Chemotherapy brought no positive effect at all. Seeking any help, we made contact with the doctor from London clinic and he recommended re-radiation. The procedure is extremely risky. We've been warned about various complications, included death. But we had nothing else and we had to try.....


Martusia is the 1st Polish patient after re-radiation of DIPG. We feared very much but we had to take over that risk also to give hope to other children being in similiar position. Fortunately the tumour has been stopped. We don't know for how long... DIPG may attack again anytime and then there will be no rescue anyway. To save time, to stop the tumour for at least few months the biological drugs medication is necessary. The teatment in Poland  came already to the end and Marta has been eliminated from clinical trials here, but she has her last chance in London – the only one...

Marta Przybylska


The Harley Street Clinic in London is ready to take Marta on December 27th. The treatment will be started the day after. Unfortunately, the cost of this treatment, calculated for several first cycles, is extremely high and it overpasses our financial capabilities. We are desparate...  It is very difficult for us but we kindly ask you to help us in saving our daughter. We beg you, help us to keep her with us.... she should be here....

451 179,55 zł ( 116.86% )
21580 donors

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