Ostatni dzwonek Mikołajowego serduszka
Całkowita korekta wady serca w Munster
Ends at: 23 June 2015
Wiadomość od mamy: "Kochani Mikuś jest już na oddziale intensywnej terapii, operacja przeszła według planu, Mikuś wybudził się i samodzielnie oddycha. Mikołaj kilka dni po operacji świetnie sobie radzi po tej operacji, bawi się i rehabilituje, szybko wraca do zdrówka. Jak sytuacja pozwoli już w poniedziałek wróci do domku!"
“Boy’s state of health does not allow for the defect’s correction. Only in case of the severe hypoxia the anastomosis on the other side can be performed, that will improve the performance of saturation for a while but the defection won’t be fully corrected. I suggest you inquire at another cardiac surgery center”. Absolute trust disappeared. They started seeking help.”
The first pneumonia did not go without hospital. Strong antibiotic therapy was not everything that three month old Nicholas had to deal with. Alarming murmurs have been already heard by the doctor during the first exam. Immediate transport to Poznan. The infection weakened defenseless newborn. Unexpected infection seemed to be an undefeated storm . Fortunately, strong antibiotic therapy handled with this. Stay in hospital revealed parents something else: Your child was born with a serious complex heart defect in the form of atresia PA type 4, membranous VSD (ventricular septal defect), ASD II, aortic valvular insufficiency first degree, as well as clubfoot and significantly immunocompromised. Immediate operation is necessary. It will be the first operation but it’s the beginning, even 5 will be needed. Tears flowed down the cheeks themselves. Nothing else reached to the desperate parents. Think of a child's life mortal danger surpasses even those filled with optimism every day.
First operation was held few days later. Saturation increased to the safe level and Nicholas’ breath became much calmer. For parents, who did not know much about heart defect – it was a sign that the defect has been “repaired” by the one of five required operations. They appeared on every controls and always heard the same words: “ Everything is under control. You have to wait. We will compare the results during the next control. This is not the time for another treatment.”
Absolute trust in doctors and certainty that their child’s life does not threaten any danger. It was just an illusion. After next catheterization parents received information “ he is not qualified for an operation”. When they asked if they should seek for the help abroad, they received answer that there is no need because they cannot help too. Unfortunately, help in the form of waiting did not work but only caused the extension of the defects which has been already very broad. While waiting for the extract one of the doctor said: “ Boy’s state of health does not allow for defect’s correction. Only in the case of the severe hypoxia the anastomosis on the other side can be performed, that will improve the performance of saturation for a while but the defection won’t be fully corrected. I suggest you inquire at another cardiac surgery center”. Parents held their breath because after 3 years of treatment they find out that the doctors reached a dead end.Thanks to support of family and friend, on 7th Professor Malec. “The total correction of Nicholas’s defect is possible but we cannot wait more than 4 months”. “Temporary” adopted help in the form of fusion could be replaced by the total defect’s correction before the age of one year. Left pulmonary artery’s narrowing has been still very dangerous. This is the last chance to repair the heart of Nicholas.
4 months is the time Nicolas was given by the Professor Malec to undergo heart defect’s correction. After that time we will be able only to apply temporary help which will not help for a long time due to the fact that the total correction will not be possible. Boy’s parents are modest people. They somehow afford everyday life, controls and transportation to the hospital. They have no savings, no connections and they aren’t recognized. A huge amount is needed to help Nicholas. The love for a child pushes parents to do everything in order to make it. Hiding pride and bagging for help. The chance for a healthy heart for Nicholas still exists. Do not let the time to stop beating heart of the four year old boy because of lack of concern for the patient’s good.