I am looking at my sons, but with a great love in my heart I feel a great sorrow. They should be today both same, happy, healthy and handsome. Sebastian have barely survive. After tragedy he looks different that his twin brother. We do everything what we can to make him happy, even when he is in great pain. We can't allow to make him feel worse than his Brother. Please, help us to fight for our child.
Our Twins have been a young healthy boys. They grow up in happy family, all time happy, playful, in move. They loved to help theirs father in his home works, loved to go to kindergaden. But now it is only a memory. I can barely remember past times. Like a differnt life that will never come back. But I can't give up, I need to fight for my Son. a childs happiness is the most important thing in a Mother's life.
This happened almost 5 years ago, before Christmas Eve. Instead of preparing for Holiday we were in the hospital. Sebastian had a huge belly ache and was vomiting. We thought it was food poisoning, but tests show us that he has diabetes. Blood sugar level was extremely high. We were shocked, but we didn't panic. Everyone can live with this. It will change our life style, but I didn't realise how much...
He was suffering more and more. After another test- diabetic ketoacidosis. My child who only this morning seemed healthy now is fighting for his life. His brother held my hand and with fear in his eyes asked me when Sebastian will wake up.
The doctors could not wait any longer. His blood sugar level was too high and they need to bring it down.
Then during the treatment he suffered a massive brain swelling and fell into a coma. For three weeks our Son was between life and death, it is all we can do to not fall into a depression. Finally the swelling has reduced but Sebastian is still in a coma. Months after months... Like a nightmare. They told us to be ready for a worst scenario. Loose our Son, Maks his brother. We nearly lost him a few time. His heart stopped, doctors managed to save him at the last minute. We asked- "Will he wake up?" The answer was "Miracles sometimes happen."
And the miracle did happen! Every moment at our our Son's side, we prayed for his health, exercise him 12 hours per day. And then his eyes react to light. After time he start showing us where is his eye, ear, nose. We were so happy! The coma has caused severe brain damage and body and face paralisys, he could not talk
But he was alive! But they didn't give him a chance. THey said that he will never be same- we didn't believe. It was our Son, our brave warrior! Day after day we have fight for him. Systematic exercises, step by step- forward to results. They said that brain damage is so severe, that he will never sit, talk, walk. We didn't want to accept this. We prayed for another miracle.
Our Son has showed us his strength. With intensive rehabilitation he can now talk, sit and even make a first steps! Sadly the right side of his body still needs to be treated. Due to the paralysis he cannot fully open his eye. Also eye nerve disappearance has been diagnosed. He has huge problems with concentration.
He has started to be aggressive as he can't control his emotions. But then... our worst nightmare- epilepsy. treatment resistant.
It is not easy. Few days ago I have took him for a walk. He was so proud- walking alone without a baby carriage. And then he had a seizure. His body was shaking on the ground. No body stopped or offered to help. Just watched it happen .
We fight for our Sons life. He needs to have full, srong rehabilitation. That is why we dream about him attending a 2 week rehabilitation camp. There, the specialist will work on his body and mind. Help him to calm down. We are not able to do this by ourselves. We don't have the knowledge or expensive medical tools.
Our Son's rehabilitation has took all our savings. But we don't regret that. We can not eat,we have sold everything to help our child. But we have another four kids we are responsible for too. We see that Sebastian wants to fight, has the energy for this! But we don't have any more money. Prices for camps, rehabilitations are to expensive for us.
We do what we can, with smile for life- a great family, Sebastian- who is a brave warrior agains all odds. He walk, he smile, he talk. We belive that everything will be fine! Rehabilitation made a miracles. But why is it so expensive?
We are forced to ask you for help. You- strangers. It is very hard, but we know that if we will not do this, we gona lost everything what we have work out with Sebastian. Please help us. Please help our Son to get back to normal life. This is all what we need. But we can't do this by ourselves.