A heartbeat of a child is the most beautiful sound a parent could hear. Apart from the euphoria caused by the heartbeat, the mom of Sebastian felt the terrible fear. Once before she lost a child. Now the baby whose heart beat next to hers, was sentenced to the illness, the doctors could not even explain.
Dandy-Walker Syndrome (DWS) - a rare brain malformation, took the family of Sebastian what we appreciate only when we lose it – normality. A feature of this disease is the hypoplasia of cerebellar vermis, which is responsible for eg. the appropriate muscle tone, maintaining a balance and coordination. Because of it, the boy does not speak, walk and sit, and that is why he requires a permanent care.
The fifteenth week of pregnancy - the amazing sound of the heartbeat came to the ears of the parents of Sebastian. It meant the life. Rhythmical heartbeating in connection with the pictures on the screen – it caused their happiness. Once before the parents of Sebastian lost a child, that is why the medical check-up were related to the tremendous stress.
The doctor said that something is wrong and all will have to be repeated in a few weeks. It was a difficult time, filled with an anxiety, but a hope too. We convinced ourselves, that this could be only a mistake of the doctors – said the boy's mother. - Unfortunately, everything was confirmed. They were given the possibility of the termination of the pregnancy. But how they could afford to have a second heart stopped beating untimely? They did not do this, a faith and a hope - they had given them a strength and they never regret their decision. Sebastian is sick, but it does not mean that they cannot be proud of his progress and boast about it at every opportunity.
The first days, when the boy spent in the hospital - Neonatal Pathology Department, were the most painful. No possibility to hug the son, watching him from a distance and wondering what the future will bring. Then there were moments of doubt and uncertainty. What will be their life together? How will they manage? However, they pull themselves together very quickly. They decided to fight and do everything in order that Sebastian met joy and happiness. The fight continues to this day, and the boy's parents did not
There are many needs, each further visits to specialists/doctors detected something new. Reduced muscle tone, problems with the eye-hand coordination, and hence: delayed psychomotor development. Also the doctors suspected that the boy is deprived of sight and hearing. Fortunately, it didn’t confirmed, but despite he has the hearing impairment and he is visually impaired.
Sebastian is 3 years old. Also, it takes his rehabilitation. Its results are not big, but nevertheless the positive effects occur, which only increases the will to fight. The boy likes the exercises. He is cheerful and not complaining, as if deep inside he knew that if he will put a lot of strength in exercises, he used to get up on his own. However, at the moment his parents are missing money. The more that the boy's father needs help after the back surgery, which he recently had. On the battlefield only mother and Sebastian remained.
Unfortunately the rehabilitation is not enough. So as the boy will be able to function better, he needs special equipment – eg. posterior-walker, which helps him to maintain the correct posture of the body and the bicycle rehabilitation, essential to improve muscle tone. Without them, the rehabilitation will not bring results. Only the regular exercises using equipment will bring improved health of Sebastian.
Sebastian has a great chance to improve the comfort of his life. His parents are doing everything to their son experienced as much of the charms of life, but obstacles are multiplying, and one of them is the financial. Therefore, we ask you for help. Let's help Sebastian his growth and the pursuit of his peers.