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Operacja Zosi u profesora Edwarda Malca była najlepszą decyzją, jaką podjęliśmy w życiu. On jako jedyny dał nam nadzieję, że Zosia przeżyje, a on zoperuje jej serduszko. Szanse, jakie dawano nam w Polsce nie zachęcały do skorzystania z próby uratowania naszej córeczki w kraju. Jeden etap batalii jest już za nami, to jednak nie koniec. Zosię czekają jeszcze dwie operacje. Wierzymy, że nasza córeczka cały czas będzie miała Wasze wsparcie i wspólnie będziemy mogli zapewnić Zosi zdrowe serduszko.
Serdecznie dziękujemy wszystkim, którzy wsparli zbiórkę dla naszej córeczki. Bez Was malutka Zosia nie mogłaby wykorzystać szansy, jaką dostała. Jeszcze raz bardzo dziękujemy!
We thought we were ordinary. We have had a normal life. Normal work. Healthy, beautiful baby girl Antosia. Standard house. We have had a standard way of thinking. We have lived in our asylum and enjoyed the tranquility the best we could, knowing that nowadays so many people want to live above standards. But today we would love to go back to those days when fear didn't paralyzed us immediately after waking up, when tears wandered down our cheeks only with emotion and laughter ...
Today, so much has changed. Today, we have wandered from the well known standards of safe currents and shore. Today we are surrounded by the sea of fear, ignorance, lack of understanding and continuous, mind piercing question: "why us?", "Why it happened to us?", "Our family?", "Our unborn baby?". Today the standard life seems to be an unattainable dream, even though we try to fight for it so hard. Because suddenly ... on the ordinary day, which was like thousands of other days in our lives, something had changed. Without any warning, without notice, we have become extraordinary, and our unborn daughter Zosia was diagnosed with Ebstein syndrome - very rare congenital heart disease. Our daughter became one of the 1% of those unique children. Children who have such a small chance of survival.
We planned to go to the ultrasound together with my husband, but as usual the standard scenario: work - my husband has to go back. I stayed by myself, but it shouldn't be unusual, it's just an ultrasound. I had one before, I know what it looks like. Doctor will only check if our baby is growing properly? But I was wrong ... it wasn't the same as before. I have never thought about it. But why would I? Life was kind to us, never put a spoke in our wheel. Why would I even think that this time could be different? Standard doctor's office. No unusual symptoms. Not even a hint of anxiety.
I'm going in.
I have always thought that nowadays us women, we are strong, independent. But suddenly everything turned out to be untrue. Doctor said: 'genetic defect'. I don't understand. 'Heart defect'. I don't know what he's talking about. Suddenly our ordinary world, that we know so well, doesn't exist anymore. Just like that, it falls apart. Me, my husband, our family, we all break into million pieces. Everything until this moment that was indestructible, reliable and durable, becomes a question mark. And I feel like I am dying, I feel like that tree that is dying because someone unintentionally cut its roots. I'm getting weak. Empty. Terrified.
Months have passed since that moment. Months unusually counted in tests, checking the pulse, heart rate, my well-being, baby's movement, conversations with doctors, decisions. Time has passed like nothing's changed in the world. But I want to scream that I do not agree, that no one has the right to take our baby's health, normal childhood, standard functioning, being with us. Nobody has the right, because I do not agree! Today we have built a new foundation of our persistence; foundation built by faith that everything will be ok, built by people who want to help us and by our extraordinary family, which is still not used to living extraordinary life according to the unknown patterns, and guided through unknown path.
Sometimes we feel like we are blind, tripping over furniture, things and objects, searching for light and the way out of this situation. The only thing we know is that we can not give up. After all, the stakes are too high, it is about our daughter's life. The only hope for her and for us is a very expensive heart surgery in Germany. It is the only chance we got. Zosia's heart defect is very rare. Children from all over the world come to this hospital, so doctors are much more experienced and can perform such a difficult surgery. Zosia's birth is scheduled for December 2, 2015. That is why by the end of November, we must collect the amount of 51 500 euros, so that Professor Edward Malec, the world-renowned heart surgeon, could try to save our baby's life. This letter is a supplication to leave your standards, an appeal to people who want to help our extraordinary family. Your support is the only chance for us to return to so much desired patterns and happy standards.
Thank You, Karolina & Piotr - Zosia's parents