Hi. I’m Stan and I’m 5 years old. Basically I struggle with my physical disorder whole my life. But now I really need your help so I can undergo a surgery that can be a real life changer for me. I fight for my health everyday, I practice a lot, my parents take me to lots of different rehabilitation exercises, specialists and we try everything that may possibly help me. I do it all because I believe one day I can became a hockey player - that is my dream. Unfortunately all those daily exercise is not enough for me anymore. The surgery would be the first one to undergo and make the last one. Sometimes my mother calls me „My sweat honey-bunny”. I tell her not to call me that. I prefer when she calls me „a tough cookie” - which I am after all and no one can deny it. But still I cannot handle some things by myself and I don’t want to waste all of my effort I did my whole life.
The whole thing with the rehabilitation began when I was three months old. My parents noticed then that my left hand and the left foot are not very active in comparison with the left side. As it turn out, it was cause by a intraventricular hemorrhage, that happened when my mother was in pregnant with me. Doctors said that I have a contend with cerebral palsy, a paralysis of left side of the body. I went thru botolinium injections - arms and legs, both legs plastering - to stretch the Achilles tending and equally weight down both legs. I attend lots of „-ists". physiologists, psychologists, therapists,, hippotherapists, acupuncture, I know „martial arts” - bobath, Vojta I go to rehabilitation before and after kindergarten, almost everyday. Sometimes even on Saturday. I do everything I can to better my condition, to make my dream come true.
As you can see at the picture, at a first glance you can tell I am a happy, smiling healthy boy. That is because I work hard every day. You would have to look at me for a while to notice that my hand looks strangely twisted sometimes and I run in a funny crookedly way. Sometimes I have enough of all of this exercises and doctors and I get angry. But my parents try to be patient and always explain me why all of this is so important to me and that we can see progress.
The surgery is a great chance for a huge improvement, so I could stop spending my time with physiotherapists and on rehabilitation camps, but I can start being a kid - focus on having fun. That all gives me a strong motivation. I don’t want sickness to ruin my childhood.
Over a year ago I went to kindergarten. I'm doing pretty well. In the house, except that I practice, sometimes mischief. Mamie say that "you can not be polite circles." I am, after 5 years. Therefore, I do not want to weakness ruined my childhood.
The surgery in March is called fibrotomia - it’s all about cutting cramped muscles thru mu skin to eliminate contractors. Now my parents hired a complicated device - Innowalk - that improves the way I walk and prepares my body for the surgery. There is still a lot of challenges along the way for me like: orthotics, botulinum injections, physiotherapy, hippotherapy, hydrotherapy, kinezytapeing or rehabilitation. I also know that I need it, so I could run, play ball, skate and ride a bike like other children. Fortunately, I have wonderful parents standing by me all the time. I als believe that you are able to help me defeat the challenge, that right now is the cost of treatment and rehabilitation. Without this, I could lose the win what I’ve been working for so hard my whole life.