22nd week of pregnancy. You await with great joy your next doctor's appointment. On the screen, you preview his movements, see his mouth and notice a tiny hand that waves at you shyly. You smile. And wait. You wait… for all that is to come, but surely not for this. A heart defect. Of a heart that is so fragile, not fully developed yet, and already very sick.
We were not the only ones who could not believe this bad luck. Doctors repeated diagnostic tests five times. Prenatal diagnostics gave hope that his heart would become normal and healthy. After his birth, doctors had even more doubts if his heart defect would heal completely. Septal defect located at cardiac apex (tip of the heart), which measures over 15 mm, is quite a challenge not only for Tymek, but also for the whole team of doctors.
Deep inside no one wants to hear that his or her baby is going to be born ill. We were not ready to talk about this, to answer questions from our family, when we ourselves did not know what the future was going to bring. We went through the most difficult times in solitude.
When Tymek was 15 days old, he had his first surgery. Being only 2 months old, he had another unplanned heart surgery (a modified Blalock-Taussig shunt). In his very short, not even three-month long, life we trembled with fear over his tiny heart twice already.
Tymek is being managed by professor Malec and doctors from Child Cardiac Surgery Ward in Łódź. Doctors say that Tymek will have to undergo two major surgeries that will eliminate the defect and help create a single ventricle (a heart with just one chamber). Professor Malec gave us hope that it may be possible to keep the whole heart, and not just half of it. Currently, we are waiting for a planned heart catheterisation. Results of this test will be key with regards to the future of our son.
While we are waiting for possibly the most important examination which will determine the course of action in order to save Tymek's heart, we decided to make up for the time he spent in hospital bed, fighting the tube in his mouth and low saturation when he really should be close to his mum, having a good start to this world that every child deserves.
In his short life, Tymek has been through a lot. The fight for his heart is still on, but we try to stay positive and have faith. We want to believe that everything is going to be all right, and our little son will win the battle for a healthy heart.
Tymuś - brave heart, and behind him the whole army, which is ready to rush to the rescue. Hope, on the whole heart still smoldering, and with it a chance for a completely normal life for Tymek. Before them, many difficult decisions, probably even more endless night at a tiny cot, in which oblivious Tymuś will fall asleep. Let's help raise funds for rehabilitation.