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SMA and a dramatic race against time - Zosia needs the most expensive medicine in the world!

Zosia Pająk

SMA and a dramatic race against time - Zosia needs the most expensive medicine in the world!

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to 75365
Text 0207274
6,15 zł (including VAT)
Donate via text now
Fundraiser goal:

Gene therapy for the fight against SMA

Fundraiser organizer: Fundacja Siepomaga
Zosia Pająk, 3 months old
Skawinki, małopolskie
Starts on: 01 June 2022
Ends on: 02 September 2022

Fundraiser description

The most difficult time for the family has begun! Zosia was only a dozen days old when the phone from the hospital rang... The message that was delivered turned everything upside down! SMA - Spinal Muscle Atrophy! Further medical examination confirmed a brutal diagnosis! The only hope for Zosia is gene therapy. Unfortunately, the world's most expensive drug costs a fortune.

Read the desperate appeal of Zosia's family and help to save the girl from the effects of SMA:

Zosia was born on May 4, 2022. She was big, and strong, and there were no indications that a deadly disease was lurking in her body... A few days after her birth, she returned home. We were so happy, the most important thing for us then was that Zosia was born healthy. A moment later we saw how perverse fate can be.
All joy was interrupted by a phone call from the hospital informing my mummy that she needed to take me there again, immediately! The doctor delivered very bad news. Spinal Muscular Atrophy - The three words that started our tragedy... 

SMA is a genetic disease, which causes the death of neurons that are responsible for the work of muscles related not only to movement, but also to swallowing, breathing and life. In another hospital, further medical examinations were carried out, which only confirmed the verdict. We have been stripped of our last illusions...

Fortunately, thanks to screening tests, which very quickly detected the disease, Zosia immediately started treatment with the reimbursed medicine that slows down the progress of SMA. The first injection directly into the core was already given to her. Zosia will have to receive them for the rest of her life, which is associated with multiple hospital stays and multiple spinal injections. It is a lot of pain and suffering that a little child has to endure… We are paralyzed by the thought of it. Additionally, we are afraid of complications. We are also afraid that the proposed SMA-slowing therapy may not be reimbursed in the future in our country... Still, there is hope for Zosia that SMA will be completely stopped! There is a way to stop the disease once and for all! It's gene therapy. Only gene therapy with the most expensive medicine in the world can free Zosia from the effects of SMA forever and make her live independently in the future! Unfortunately, its cost is over 10 million PLN, and besides, constant rehabilitation and care of specialists are needed.

We are here because we will never be able to raise such a huge amount of money on our own. We need thousands of people with big hearts who will be moved by the fate of our little girl! We believe in a miracle for Zosia. After all, here on Siepomaga, there were many such stories! We can see children who had already received gene therapy and are making tremendous progress. We believe that the same awaits our Zosia.

We wholeheartedly ask for your help. This is the only way to save Zosia from SMA!

The Zosia’s Family

Donate via text

to 75365
Text 0207274
6,15 zł (including VAT)
Donate via text now

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