For the first time, Norbert had to start his fight against neuroblastoma at the age of 4. For eight months the Department of Oncology at the University Children's Hospital of Cracow in Cracow-Prokocim was our second home. During that time we got to know the disease from the worst possible side. As in a huge “oncofamily”, we enjoyed every little Warrior's success, we cried together when one of them lost his heroic fight. There we got to know what the fear tastes like, what a great thing hope is.
Until recently, we thought that 6 years ago we slammed the door of the oncology department forever. Each subsequent medical checkup calmed our vigilance more and more. We again managed to start a normal life, life without fear. Norbert began the fifth grade, he devoted his free time to ice hockey training. At weekends we went to the matches, watching how he pursued his passions. We were able to lead a normal life.
It was supposed to be a routine check, nothing indicated that our son was being attacked by cancer. After all, he is an athlete, regularly subjected to medical examinations, which have always been correct. Just a routine tomography and we were going back home, to school, to ice hockey training. But the world turned upside down. November 28th, 2017 Norbert again has to struggle against the malignant cancer – NEUROBLASTOMA.
Our horror came back. Norbert exchanged the ice rink for the oncology unit, the hockey stick was replaced by the drip stand. Taking superior care of Norbert completely changed our life. We devote all our time and efforts to Norbert. Grandparents again become parents for Simon and Oliver - Norbert’s younger brothers.
We knew that this time the diagnosis is worse than the previous one, and the prognosis is very serious. We wondered how it happened. We were surprised, because no other studies, except the tomography, indicated the presence of the disease. Norbert has always been successful at the sports medicine clinic, and the exercise tests associated with it have not caused him the slightest problem. The cancer did not cause any symptoms, there was no decline in form or other ailments. Only the result of the tomography - a tumor in the chest, size of 7 x 9 x 7 cm ...
Norbert was classified as a child with high-risk neuroblastoma and has to undergo very aggressive oncological and surgical treatment. At present, Norbi has been subjected to hematopoietic stem cell transplantation in the Cape of Hope - Wroclaw Medical University. The next step is the administration of antibodies - the so-called anti-GD-2 antibody therapy. This is the only chance for our son. Unfortunately, the National Health Fund will not refund Norbert's treatment, and its cost has been estimated at a gigantic amount: almost 360.000 EURO (PLN 1.7 million).
Our son’s life was valued at nearly PLN 1,700,000 and we have only 3 months to raise these funds.
We do our best to gather money from own funds, but it was necessary to partially give up full-time professional job and take care of Norbert. The closest family helps us as much as it can. We do everything to ask you for as little backup as possible. However, besides Norbert we have two children to support. In these circumstances, the only hope for us and our Warrior are good people. Maybe it is even the last hope. That is why we are begging for help. Norbert does not give up - he won once so he must win twice. Being a hockey player for three years, he learned that it is necessary to fight fiercely and to the bitter end. During ice hockey matches, he has always heard cheering fans. Today he also needs this encouragement, but words are not enough. The value of his life has been set at a specific price. And it depends on you whether we will be able to pay the price for Norbert's life...
I do not know what is ahead of us, I do not know if we manage to do it on time, I do not know if anyone notices our pleading. I strongly believe and I hope. I have this hope, which in “oncoworld” keeps you literally alive. Thank you for every gesture of goodwill. It changes the sparkle that is still glowing in our hearts into a flame.
Ewa and Piotr - Norbert's parents