#ITchallenge

organizator skarbonki

Every piece of information about a child's illness is a terrible message, but when it concerns people we know - it hits us twice.

Kamil is always a cheerful and smiling person who has been working in our team for over a year. Many of us have known him for a longer time. Three months ago he became dad for the first time. When his daughter was 2 months old, he heard a terrible diagnosis. Maja has type 1 spinal muscular atrophy (SMA). Due to a genetic defect, her body does not produce protein that feeds motor neurons. Every day she irrevocably loses her mobility, muscles atrophy, including those responsible for eating and breathing.

It is hard to imagine the pain that Kamil must feel when he observes the suffering of his little Maja every day. With all our strength, we would like to help him and take this terrible burden off him.

Some time ago, this disease was equivalent to a sentence - now, thanks to advances in medicine, there is a chance to stop its progress. The hope for life for a girl is officially approved in the USA gene therapy, whose costs are huge (9 000 000 PLN). The drug will soon be on the list of authorized in the EU, but before it reaches Poland, it will be a time that Maja does not have. The more that weakened respiratory muscles will not be able to effectively cope with any disease. The prevailing epidemic is therefore an additional, terrible threat.

Let's help raise funds for Maya's treatment. All hands on board! We know that it’s possible with the help of IDEMIAns.

We also invite you to visit: https://www.facebook.com/walczymaja/

Wsparli

100 zł

Anonimowy Pomagacz

#ITChallenge
50 zł

Anonimowy Pomagacz

100 zł

Anonimowy Pomagacz

103 zł

Anonimowy Pomagacz

103 zł

Teti

#ITchallenge

Pokaż więcej

Darowizny trafiają bezpośrednio na zbiórkę charytatywną:
4%
47 518 zł Wsparło 619 osób CEL: 1 000 000 ZŁ
Wesprzyj