Let’s save Adam's breath! Please give my baby a chance for a new life...

We are stuck in a vicious cycle of inhalation, infection and drug dosing. And fear for life, which has lasted continuously for 3 years. When I thought our reality would be like this forever, I found my salvation.

I thought the hell of operations, fears and difficulties was behind us. The reality of my son's illness made me brutally realize how wrong I was.

Laryngeal flabbiness, which seemed to be common among boys, has become the beginning of our hospital journey. When Adam was 5 weeks old, we were released home - the doctors gave me short instructions on how to insert a nasogastric tube. And actually, the aid ended there ... Later it was decided that alternative nutrition (PEG) was needed. The standard procedure became the cause of our nightmare. We have stayed with the complications after the surgery until today.

Those pictures keep coming back to me. The absent gaze of my child , strong medications, a condition described as severe… Is there any worse news?

It turned out that this was not the end of our ordeal. Adam lost the ability to swallow and make sounds. Breathing became impossible on his own. A tracheotomy tube was installed – at the time it was the only rescue.

What  helped my son to survive, now destroys the effects of our everyday hard work. My child does not have time to play - his day is completely filled with inhalations, suctioning of secretions, massages, rehabilitation. The tube makes Adam get sick much more often - in our case infections last 2-3 weeks. They happen, on average, once a month. Can you imagine it? My child feels bad most of the time. And I cannot help it, although we sought help from specialists all over Poland ...

We always heard the same thing. We should wait until Adam grows up, it's too big of a risk ...

And for me, the risk is that the tube may become clogged at any moment, and my son, not aware of it, will start to choke. What if I don't make it on time for this one time ?! I don't even want to think about such a scenario. With the tube inserted, Adam's “speech” is limited to a few sounds. They are not words. Will I never hear a full, clear word from him, or will we never sit down together for a meal? Ordinary life seems to be the greatest, unfulfilled dream ...

When the level of hope  dramatically dropped, I started looking for parents whose children suffer from similar diseases. It was from them that I found out about a Swiss clinic that specializes in similar cases. After that time, the light finally appeared in the tunnel! I collected several hundred pages of medical records, films from hospital examinations, all the videos from the rehabilitative stays - all in order to fight for Adam's health again! When we got the qualification - it's hard to put into words ... Finally someone can help us. Unfortunately, it's not that simple. The surgery to remove the stenosis of the larynx and the tracheotomy tube costs almost PLN 800,000! A huge amount of money  for Adam to get a taste of childhood. For ending the nightmare of fear for his life once and for all.

We need the huge amount! We need the help and support of all people with good hearts. I know I am asking for a lot, but today I am begging for a miracle for my child! There is nothing more important than his smile, a peaceful sleep… than the security that has been brutally taken away from us by the disease and complications.

This operation is a hope that  the fear will disappear from our everyday life, that rehabilitation will start to work, and Adam will regain his childhood. The disease destroyed much, but not all is lost. And if there's hope, I'll stick to it until the end. If you join me, our chances will increase, and this is just a step away from the miracle!