treatment for autoimmune brain encephalitis in Kiev
Ends at: 01 January 2022
Each visit to the clinic opens up new opportunities for us to overcome the disease. Stopping treatment means losing everything! Help me save the baby!
I look at my son and I would like to give him only what is most important: safety and health. These are the basic issues that should be within my reach just like that, and yet the ordinary sometimes turns out to be the most difficult to obtain.
Disturbing symptoms emerged at an alarming rate. For most, my search seemed pointless, but with all my mother's heart, I felt a growing unease. The suspicions that something was wrong with my child's health haunted me ... Despite the visible symptoms, the search for a diagnosis took forever. In fact, I found her when I was on the verge of losing hope ... My son was losing strength at an alarming rate, and I was helpless in the face of what was happening.
This news turned out to be a sentence for us: PANDAS syndrome combined with autoimmune encephalitis. At such moments, the world moves away from under your feet and the future is in question. I didn't know what awaited us! How to prepare an adolescent boy for prolonged hospital stay, endless procedures related to subsequent tests and pain related to receiving injections? I knew that we were doing it for his good, but for us everyday life was a streak of never-ending fear of what the disease might surprise us with ...
At a time when we had virtually nothing to lose, we decided to use the help of a Ukrainian clinic that specializes in the treatment of similar cases. The treatment was very demanding, but a spark of hope finally appeared in our lives! And although it is hard to believe, the reality began to change overnight - Adrian ceased to be so nervous, aggressive behavior disappeared, and the surrounding world ceased to frighten him. Letters merged into words again, and simple words became uncomplicated sentences. What started to change with each infusion was indescribable for me. I felt like I was getting my baby back. As if Adrian came back to us after a long absence...
Despite the temporary improvement, I look to the future with great fear, because stopping the therapy in Ukraine will make the worst come back. I am terribly afraid of this! Unfortunately, the costs of treatment are amounts that are hard for me to imagine at this point! We managed to get a loan for the first applications, but now no bank will provide us with such an amount. We need help to save Adrian from the disease, from further complications ...
No mother should helplessly watch suffering… HOW her child suffer. Please support us. Any help have great importance.