Fundraiser finished
Aleksander Mączyński - main photo

Alex, the big-hearted boy

Fundraiser goal: Heart surgery and post-surgery rehabilitation

Fundraiser organizer:
Aleksander Mączyński, 14 years old
Wrocław, dolnośląskie
Congenital Heart Disease – Ebstein’s Anomaly
Starts on: 12 November 2021
Ends on: 6 December 2021
PLN 402,932(102.14%)
Donated by 1562 people

Pledge 1.5% of tax

KRS0000396361
Purpose of 1.5% of tax0159764 Aleksander

Fundraiser goal: Heart surgery and post-surgery rehabilitation

Fundraiser organizer:
Aleksander Mączyński, 14 years old
Wrocław, dolnośląskie
Congenital Heart Disease – Ebstein’s Anomaly
Starts on: 12 November 2021
Ends on: 6 December 2021

Fundraiser result

Alex has returned home with a repaired heart!

At the end of March, Alex successfully underwent tricuspid valve surgery at Great Ormond Street Hospital in London. The surgeons implanted an artificial ring which narrowed the diameter of the natural tricuspid valve ring. Alex also underwent the plasty of valve leaflet, which were partly attached to the surface of the heart muscles, some of their heart strings shortened or present redundantly, preventing the leaflets’ movement and closure.

Thanks to the precise surgical intervention and the attentive care of the medical team, Alex recovered very quickly from the operation and was discharged from hospital after just a few days. Due to some ECG abnormalities, we stayed longer in London waiting for the cardiac follow-up, the results of which eventually proved positive. The proportion between the previously greatly enlarged right atrium and right ventricle has returned to almost normal. The regurgitation in the tricuspid valve could not be completely eliminated, however, now the small degree of leakage does not have a negative impact on the functioning of the body. Alex's heart is safe, but it will still require regular (though less frequent) check-ups.

Alex returned to Poland with a recommendation to gradually return to all activities, including active play and sports. The next year is crucial for his heart to get back in shape and to assess the direction of his cardiac treatment in the future. Alex is currently receiving physiotherapy and osteopathic treatments. He feels good and is full of optimism for the future.

All of this was possible thanks to you – everyone who supported our fund raiser, both financially and by sending information about it to big-hearted people all across the globe. During the recent very stressful months, you have also provided us with emotional and moral support, wishes and good thoughts.

Although our words are so little to reflect our emotions and gratitude for all the help we have received from you, thank you so much! All this time we felt that we were not alone!

Fundraiser description

This is our son Alex. Although he looks like a healthy child, there is a sad secret hiding in his heart....

Alex was born with Ebstein's Anomaly and pulmonary valve stenosis. This defect is very rare and takes a different form for each child. In Alex's case, the disease is associated with massive tricuspid valve regurgitation, right atrial and right ventricular hypertrophy. As a result, Alex has an adult-sized heart.

About 8 in 1000 babies are born with a heart defect. Only 1% of them have Ebstein's Anomaly. Most of these children do not live up to the age of 2. Alex is very lucky. So far he has been able to live a relatively normal life. Unfortunately, the consequences of his disease are gradually becoming more serious and we have faced the necessity to carry out the surgery which will save our son's overgrown heart.

Although the diagnostics in Poland is very good, there are no unified standards of treatment. Numerous consultations both in and outside Poland led us to Great Ormond Street Hospital in London which offers low risk surgery and where patients from all over the world are treated effectively. We want Alex to be among them.

We have learned there that the optimal age for this kind of surgery is 3-6 years, and moreover,  once a child enters the puberty period without heart correcting surgery, there is a great risk of irreversible changes! Alex will soon be 10 years old. This is the last moment for a relatively safe intervention. 

Suddenly, we found ourselves in a challenging situation of having to quickly raise a huge amount of money for Alex’s treatment.

However, we believe that Alex's big heart will be fulfilled by many other good, open hearts willing to support him.

With your help we are confident we can achieve the necessary target for the surgery.

Karolina and Marek Mączyński

Aleksander Mączyński

➡️ Aleks, chłopiec o wielkim sercu. 💚 (opens a new tab)

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