Fundraiser finished
Aleksander Bielecki - main photo

It's a shock - in a moment the structure will tear Aleks' back! Urgent surgery needed! 

Fundraiser goal: Wyjazd do USA na pilną diagnostykę

Fundraiser organizer:
Aleksander Bielecki, 21 years old
Wrocław, dolnośląskie
Neuromuscular scoliosis, muscular dystrophy, encephalopathy
Starts on: 11 January 2024
Ends on: 29 December 2024
PLN 106,716(100.31%)
Donated by 2148 people

Pledge 1.5% of tax

KRS0000396361
Purpose of 1.5% of tax0156547 Aleksander

Fundraiser goal: Wyjazd do USA na pilną diagnostykę

Fundraiser organizer:
Aleksander Bielecki, 21 years old
Wrocław, dolnośląskie
Neuromuscular scoliosis, muscular dystrophy, encephalopathy
Starts on: 11 January 2024
Ends on: 29 December 2024

Fundraiser result

Kochani!

Dzięki Waszej hojności i dobroci serca udało się doprowadzić do końca zbiórkę, która umożliwiła przeprowadzenie kontrolnych badań diagnostycznych w klinice w Wilmington w USA.

Wyniki tych badań są pozytywne, jednak dalej zbiera się płyn przy kręgosłupie, powodując miejscowy obrzęk. Stan Aleksa wymaga wciąż stałej obserwacji i monitoringu  bardzo skomplikowanej konstrukcji stabilizującej kręgosłup. Pomimo że Aleksander jest najbardziej skomplikowanym,  operowanym na świecie przypadkiem skoliozy, nie ma możliwości refundowania jego leczenia zagranicznego w ramach NFZ,  jakie prowadzi klinika, która dokonała operacji.

Aleksander Bielecki

Tylko dzięki Waszej pomocy możemy mieć nadzieję na lepsze życie dla Aleksa, a tym samym dla całej naszej rodziny.

Operacja  Aleksandra nie kończy jednak procesu jego leczenia i kosztowanej rehabilitacji, która będzie mu towarzyszyła przez następne lata, dlatego prosimy w marę możliwości o dalsze wsparcie w postaci wpłat na subkonto. Pamiętajcie o nas przy 1,5% podatku.

Codziennie dziękujemy za cud nowego życia naszego syna, do którego przyczyniliście się Wasza pomocą!

Anna i Krzysztof  Bieleccy

Fundraiser description

Something happened that no one expected - the rods that hold Alek's spine came loose! They are putting more and more pressure on the muscles and skin, and this will eventually lead to it tearing! In a moment Aleks' life will be in danger!

We need to return to the USA as soon as possible - the doctors have said they will undertake an extremely difficult surgery. They are the only ones able to do it.... The cost estimate from the USA is over $200,000! We are begging for your help, not thinking that we will be forced to do this again so soon.... 

The vision that all will be lost, that the pain and fear of death will come back again, is real again!

In August 2022 we returned from the USA after 2 stages of surgery that saved Aleks' life. It was possible to carry them out only thanks to you - people with big hearts, who were not indifferent to our son's suffering! That time we hoped that this was the end of fear, struggle and misery and that Alexander would get a chance for a new life. Unfortunately, a few months passed and it turned out that the structure was not able to support the spine!

The first stage of the surgery was carried out as planned on 15th June. The operation consisted of loosening the vertebrae of the spine and performing an osteotomy. Unfortunately, there were unexpected complications... Aleks suffered a pneumothorax and a bacterial infection. The next operation had to be postponed until 12th July. Our stay in the USA lengthened, costs increased. We were heartbroken... Then we once again asked for help. And you saved our son again!

Now we are facing again a drama that no one expected.... We are unable to hold back the tears as we look at our son's back - the structure is shifting, it is not good enough for him - it will soon pierce muscle and skin, inflicting unimaginable pain on Aleks!

We have to go back to the USA! The spinal bracing needs to be replaced as soon as possible and the rods in the pelvis need to be blocked. This is a situation that, due to the rarity of Alexander's case, no one could have foreseen beforehand....

The loose structure poses an immediate threat to life! Day by day, Aleks is having more and more trouble moving and the pain has returned again, making it impossible to function. The doctors have informed us that the spinal stabilising rods have to be replaced in February at the latest!

So please, we ask you on behalf of  Aleks - help us once again at this extremely difficult time in our lives. We can't do it without you...

Desperate parents of Aleks


*The fundraising amount is an estimate - this includes the price of the surgery and estimated flight and accommodation costs for the treatment.

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