Anna Opieka - main photo

Help Anna undergo a necessary surgery!

Fundraiser goal: Orthopedic surgery at Vienna clinic, accommodation, and transportation

Fundraiser organizer:
Anna Opieka, 12 years old
Wrocław, dolnośląskie
Spondyloepiphyseal dysplasia congenita, spinal cord compression
Starts on: 24 July 2024
Ends on: 30 April 2026
PLN 160,300(100.45%)
DonateDonated by 634 people
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Phone number
75365
Text
0613554
Cost PLN 6.15 gross (including VAT)
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KRS0000396361 The Siepomaga Foundation
Purpose of 1.5% of tax0613554 Anna

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Fundraiser goal: Orthopedic surgery at Vienna clinic, accommodation, and transportation

Fundraiser organizer:
Anna Opieka, 12 years old
Wrocław, dolnośląskie
Spondyloepiphyseal dysplasia congenita, spinal cord compression
Starts on: 24 July 2024
Ends on: 30 April 2026

Fundraiser description

I found out I was pregnant with Anna when I was already in the 10th week of gestation. It was one of the most beautiful gifts I had ever received. Anna is the apple of our eyes, and our love for her helps us overcome all obstacles.

During my second trimester prenatal tests, I learned that our baby had abnormally short arms and legs. The final diagnosis, however, was confirmed only after her birth.

Our daughter was born with a rare genetic disorder - spondyloepiphyseal dysplasia congenita. Although, at that time, we knew nothing about the disease, we started doing our best to improve her life. Anna is our miracle - only 1 in 100,000 children born with this disorder survive!

We were heartbroken that she had to spend the first months of her life in the hospital, away from home and her older brother. When the youngest family member is ill, the whole family suffers with her. From the moment Anna was born, she required a G-tube. Seeing all the tubes attached to her tiny body made us feel even more resentful. I wanted to help her, and yet I couldn't.

Your previous donations allowed us to purchase hearing aids for our daughter! Thank you! If it weren't for you, Anna wouldn't be able to hear anything! Words cannot express how grateful we are for your support!
Unfortunately, in the light of new circumstances, the costs of Anna's treatment have risen.

Due to the disease, her hip condition has deteriorated. Her joints are shaped differently, so walking, sitting, and standing are painful. Anna cannot walk long distances. It will only get worse when she becomes an adult.

The only solution is surgery in Vienna, followed by intense physical therapy. Unfortunately, it is expensive - the estimated overall cost of the procedure and accommodation in Vienna is 150,000 zlotys!

We already know that one surgery won't be enough. Because of our daughter's brittle bones, we must wait before she undergoes another procedure - spine surgery. Please help us pay for the treatment and rehabilitation! They are a chance for recovery and life without pain!

The parents

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