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Bruno would probably start walking if only his legs were working properly. He grabs onto furniture, pulls himself up just to fall again and I can see on his face that he doesn’t understand why. We, his parents, have heavy hearts knowing that if Bruno isn’t able to have this operation, he will face amputation. We understand that it’s not the end of the world and that he can thrive without legs, however, as loving parents, we strive to give our son the best in life. We are asking for your help to give Bruno the best start in life so he doesn’t end up with a disability.
He was born on April 18, 2018, and has filled our lives with the most beautiful colors. Bruno is our world and we will do anything for him. Without this operation, we know that we will have much more to do than parents with children who were born healthy. In the 20th week of pregnancy the doctor noticed that there was something wrong with his legs. In the beginning, it was suspected that he had clubbed feet. We were shocked because all the previous ultrasounds didn’t show anything until now! It was the first blow and unfortunately not the last one.
After further research, we were told, ”Your child does not have both sagittal bones, and he doesn’t have all of his toes" It was our second bad piece of information. We had no idea what this was - would there be further complications after he was born?, can it be corrected at all? We had a million thoughts/questions and no answers. The doctor told us that one of the options was to amputate both of his legs. The doctor then told us, "People with prostheses are doing great!”. November 2017 turned out to be the worst month of our lives. Up until this, our son was developing perfectly and normally right under my heart. We knew that we did not have much time left and that we must look for a solution.
Shock, disbelief, moments of doubt - it was so hard to shake off this information. Fortunately, we had the Internet.That is where we started to look for information about our son's defect. It turned out that it is called fibular hemimelia and in Poland, 3-7 children are born with it yearly but only in one leg. Bruno was a special case, he was born with it in both of his legs. We believe that someday he will be like the other children - he will walk, run, ride a bike, play football and do all the other things that children who are born healthy do.
Soon after our researching started, we managed to reach parents of other children with similar disadvantages. We found out that there is a doctor in Florida, USA - Dr. Dror Paley - who specializes in fibular hemimelia. We finally had good news! Someone is able to give my son a chance! When the doctor came to Poland, we went for a consultation. That's when we learned all about the surgery and that the whole treatment would be an extremely complicated process: the doctors would straighten Bruno's tibias and set his feet at a 90-degree angle so that he could walk.
After removing the cast, the next stage awaits us - setting up a special device which, day after day, millimeter by millimeter will extend Bruno's legs by the missing centimeters. After all this, a long and intense rehabilitation awaits us, so Bruno can start walking.
We found the solution to our problem that will let Bruno be a happy and healthy boy! Unfortunately, there is a barrier and it is a huge one… Money that we do not have…
We got an estimated cost - the operation and rehabilitation itself is over $ 220,000! The amount is hard to imagine, let alone get. Even if we sold everything we own, we still would not be able to pay it. We know that Dr. Paley also operates in Poland, at a lower cost, but because Bruno’s defect is in both legs, he would need to be operated on in Florida as well as the following months for recovery under the eye of Dr. Paley. If it works, if everything goes as planned, it will be the one and only operation he will need to for his legs to work properly! Bruno will develop just like other children!
Having a son that can develop just like other kids is huge and that's why we are asking for your help. You are our only hope.
Jakub and Sabina, Bruno's parents
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