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A little boy is DYING❗️ CANCER took away his vision... HELP❗️

Fundraiser goal: Treatment in South Korea

Fundraiser organizer:
Damir Erdneev, 5 years old
Elista
Pilocytic astrocytoma, hydrocephalus, complete vision loss
Starts on: 31 December 2024
Ends on: 21 November 2025
PLN 43,508(11.82%)
Donated by 1289 people

Pledge 1.5% of tax

KRS0000396361
Purpose of 1.5% of tax0754432 Damir

Fundraiser goal: Treatment in South Korea

Fundraiser organizer:
Damir Erdneev, 5 years old
Elista
Pilocytic astrocytoma, hydrocephalus, complete vision loss
Starts on: 31 December 2024
Ends on: 21 November 2025

Fundraiser result

Kochani, 18 sierpnia wróciliśmy do Rosji, ponieważ nasz ostatni rezonans magnetyczny w Korei w sierpniu wykazał rozrost guza, a lekarze stwierdzili, że potrzebujemy operacji podobnej do tej, którą przeszliśmy w Rosji w 2021 roku, aby częściowo zmniejszyć guz.

Istniało jednak duże ryzyko prawdopodobieństwo, że Damir zostanie sparaliżowany. Operacja kosztowała też dużo więcej, niż pierwsza.
Wróciliśmy do Rosji, myśląc, że będzie tylko gorzej, a nasze dziecko powoli będzie znikało w oczach...

Skontaktowaliśmy się z Instytutem Badawczym Burdenki, aby przeanalizować wyniki rezonansu magnetycznego i powiedzieli nam, że to nie rozrost guza, a pseudorozrost popromienny. Cztery razy podawaliśmy specjalistyczny lek dożylnie w domu, a niedawno rezonans magnetyczny wykazał pozytywną zmianę! Nie jest to remisja, bo przy tej chorobie ciężko o niej mówić. Raz wyniki będą lepsze, a raz gorsze, Najważniejsze jednak, że teraz idziemy tylko ku dobremu! Mamy dobre myśli.

Z całego serca dziękujemy za Wasze wsparcie – mam nadzieję, że nie będziemy musieli nigdzie więcej szukać pomocy! Mamy też nadzieję, że Bóg nas nie opuści...

Olga – mama

Fundraiser description

Damir has been facing a serious disease for almost all his life. I am not able to say how many times I have been holding my crying son in my arms and trying to convince him that we can cope with everything. Damir is still a little child… He does not understand that he could die… I AM BEGGING YOU, please save my boy!

In 2020, our longed-for son was born. When he was 5,5 months old, we noticed subtle and atypical eye movements to the right and left side which turned out to be nystagmus. Later, everything happened like in a bad dream... A TUMOUR started growing in his head!

The doctors diagnosed him with astrocytoma. The first tumour resection had dramatic consequences. DAMIR EXPERIENCED VISION LOSS, and not long after the surgery, HYDROCEPHALUS occurred. Cerebrospinal fluid was noticed only after another surgery to place the shunt.

We have just finished a chemotherapy cycle that lasted 75 weeks, antireflexive chemotherapy and targeted therapy. The tumour has not stopped growing. There is no remission!

We have tried so many medicines...nothing works! The cancer damaged my son’s interbrain and caused weight loss. I am helpless!

The only thing that can save my little boy’s life is a specialist, very expensive treatment in Seoul. We were offered proton therapy. Surgery is not recommended for Damir. The localization of the tumour is unfortunate.

We have already paid for medical tests and the first chemotherapy cycle which should ensure higher effectiveness of proton therapy. We have spent all our savings. I do not know what will happen if we cannot afford to continue his treatment…I have two wonderful daughters who also have their needs... Because of my son’s treatment, we sometimes do not see them for half a year!

I am terrified for my beloved Damir’s life. I want to wake up in a reality where I am holding my three children and thanking the fate that they are healthy and happy. I AM BEGGING, please help me make this dream come true! SAVE my child’s LIFE!

Olga, Damir’s Mother

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