Extremely little time is left to help Ksawery - we need to prevent permanent disability

Attention! Very, very urgent! We know the date of Ksawery’s surgery. Until the 3rd  of June we need to collect the whole amount needed in order for the little guy to fly to USA. This is the final decision of the clinic. Unfortunately, we managed to accumulate only 5 % of the necessary amount. We are still lacking funds and we have very little time.

In the past we often managed to do the impossible - help save human lives and health when the money was a huge obstacle. Now we ask for your help and really believe that there will be a happy ending this time as well!

______

In this charity collection the future of a little boy is at stake. Without the surgery he will end up on a wheelchair and the constant pain will be his companion forever. We are fighting for help for Ksawery - a boy who can be healthy …… who might walk like all of us.

The illness is proceeding but there is a hospital that wants to help. But we need to act together, therefore, please read this and help us. Time is everything - but Ksawery doesn’t have much of it.…

Ksawery’s Parents: we remember the horrible fear, the tears we tried to hide though it was so difficult…..Ksawery is a premature baby. Right after birth his heart stopped beating. He lives only because of the immediate intervention of the medical staff that saved his life. This is the only reason we have our beloved child with us today. We didn’t suspect that those difficult moments right after birth were not the end of our struggle. The thought that we could lose him is just too horrible.

We chase death away though it left horrible scars. When Ksawery was just a couple of months old it became obvious he wasn’t healthy. The diagnosis was cerebral palsy. After the initial shock and disbelief we knew we would do everything in our power to save our son.

Ksawery’s legs and his left hand are very tense. He basically does everything with his right hand. The left hand is just for holding things. He moves differently than healthy children, but he is still able to walk. …. Still. But because Ksawery is growing his legs are bending inside, knees and joints are getting weaker. This will inevitably lead to disorder in muscular development and bone deformation. Soon our son will not be able to walk. He will have to move with the use of a wheelchair or using crutches. The worst part is that as the illness  advances, it is accompanied by incredible pain.

We hoped that rehabilitation would help our son. We rehabilitate him on constant basis, every single day. Our whole life turns around helping our son. We were hoping that spastic paralysis would go away. This did not happen. The illness is developing rapidly and it is clear that rehabilitation alone is not enough. Surgery is a necessity. Even though it’s very complicated and risky, it’s the only hope.

This type of surgery has been carried out in the US for the past 40 years. The doctors want to help Ksawery. They are the best in the field and this is the only reason we decided to trust them with our son. Any mistake can be fatal. We did not suspect we would have to look for help in the US but we have no choice. Our son is growing and the deformation is proceeding. The surgery was scheduled for May but because of the pandemic and the flight ban it was postponed. It has been scheduled for the earliest possible date though. We don’t have much time, therefore, we ask for your help now. Defeat means that the illness is going to progress causing pain, tears and disability. We can’t accept that.

We just want our son to have a normal life, to be able to walk like every healthy child. Therefore, we ask for your help and for you to give our Ksawery a chance to live without pain. We rely on the goodness in your heart in this matter of our son’s life.