I married the greatest man in the world. When, after many months of trying to get a baby, I learned that I was pregnant, our happiness almost reached the sky. So many plans, dreams, a tiny new creature in our lives. What more do you need? Unfortunately, in the middle of the pregnancy it turned out that from now on it will be much worse. "Death" has come after Eliasz and for three years we have been trying to escape it. Our last chance is terribly expensive treatment in the US ...
Stage 4 Hodgkin Lymphoma - is how the medics named the killer. I was preparing for birth, and Eliasz was stuffed with chemotherapy. The poison is designed to destroy the disease, so it cannot stay without an effect on the body. Those who accept it speak about "burning veins" and this is no exaggeration. To say that it was difficult for us, it's like saying nothing. Even the day of the birth of our child had to be determined in relation to chemotherapy.
After a PET scan, bad news are back - the treatment does not work, we need a stronger chemotherapy. However, it does not help either, the Accetris treatment program is only left. And again, failure. After the third series, Eliasz gets Grade Four sepsis. We are on the edge and death is reaching out for him.
When you hear from a doctor, "he has half an hour left," everything stops. This is not supposed to be the end or goodbye. I swore to this man that I will not leave him until death and this is the moment to fulfill the promise. The doctor says to Eliasz: "If you have anything to tell your wife, do it now." Tears flow in streams, a knot in the throat blocks every word. Everyone around him spread their hands helplessly and then my husband responds to the doctor: "I have only one wish that you stop talking silly." Everyone bursts out laughing. Death also appreciates the sense of his humour and leaves the room without him, telling him: "I will come back for you".
We are getting out from the ICU to the living, but my husband's condition is still serious. In the meantime, I find out about a very expensive medicine that gives hope. After the first dose, Nivolumab puts Eliasza on his feet. After another one, my husband recovers to the condition before the disease. We have almost complete remission. Thanks to the support of many good people who have helped us to buy salvation, we have managed to survive bone marrow cell transplantation. Slowly it seems to us, we are at last going on the road to recovery.
"Daddy, when will you be healthy?" - we often hear this question from our daughter. This battle is going on in front of her eyes. She doesn't know her daddy healthy. Constant separation, trips to the hospital, common moments caught on the run ... We hoped that with the new marrow he would continue recovering and that a "healthy daddy" would be at hand. Eliasz was taking the expensive medicine for several months and feeling very well. And then, at the end of February this year, comes the relapse. The nightmare is back...
Nivolumab has stopped working. The drip that fed our hopes has dried up. Lymphoma has metastases to the lungs, lymph nodes, and bone marrow. I do not know what to do, but I am looking for a salvation wherever possible and the doctors convince me to send documents to the United States. Eliasz is very important to me and he trusts that I will take care of it. And that's OK. In this drama, each of us has a difficult role to play. He needs to recover, I have to support him. I do it, I've been doing it for months, even years. But the further into the forest, the harder it is.
Hospital specialists in Houston decide they can take Eliasz for clinical trials on the innovative CAR-T-CELL method. However, they have very few open spaces and they cannot promise anything. There is also the other side of the coin, which in conversation with American specialists allows us to use the words: "Houston, we have a problem" - huge costs associated with departure and a long-term stay in the United States...
To get on the plane at all, we must have at least $100,000. However, this is just the beginning. From the information we received from the United States, a few days in the hospital due to potential complications is an expense of additional thirty thousand dollars. Complications are something we do not like very much, but they seem to like Eliasz. We must assume that there will be complications, hence such a huge amount we are asking for collection ... I don't even know what to say. We are not millionaires, so please help!
If we manage to fly out, we will all three go. It frightens me and overwhelms me, but we have no choice. I will not tell you what it is like to look at your husband who plays with his daughter and think: what if she doesn't even remember him?
I never had big dreams, I just wanted to have a family. And I got it - a wonderful one. I am so afraid that in a moment it may fall apart. That we will become only two. Please, give us a chance to catch the last rays of hope to save my husband. He is only 27 years old.
Anna - the loving wife