We are terrified… We are at the hospital with our son. His condition is deteriorating and all the nightmares are getting real. The doctors said that my son's chances are shrinking. He's dying. He needs a liver transplant as soon as possible but it's not as easy as it seems. Fabian’s heart needs surgery first, but no one in Poland will take his case on because of his failing liver.
It hurts me so much that my son has spent almost all of his life in a hospital bed. This time of year is supposed to be cheerful but all I can think about is whether Fabian will find presents under his Christmas tree or we will be choosing a coffin trying to heal our broken hearts.
Another grim news is that we still don't have the final cost of the operation at the Stanford Children's Hospital. Fabian’s condition is extremely critical so we estimate we need around 10 million polish zlotys to cover the costs.
We are doing the best we can to speed up the procedures. I'm paralyzed at the thought of not making it in time... So much money to raise in such little time. How are we supposed to make it?
I'm begging you please help me save my son's life
Fabian’s condition is critical. We are racing time and the stakes couldn't be higher. We're trying to save our son’s life and we won't be able to do it without your help. Learning that your child is suffering from a terminal illness is one of the hardest things that can happen to a parent. We learned that our son is suffering from two - a failing heart and Alagille Syndrome. That's like getting two life sentences in one life.
Fabian is qualified for a life-saving liver transplant, but first he needs heart surgery and no doctor in Poland agreed to perform it. The only option is flying to the US and seeking treatment in a hospital that treats children in Fabian’s condition. We're still waiting for the final cost of the operation but we know we have to start fundraising now. We're begging you for your help and waiting for a miracle that will save our son's life.
He's been fighting for his life since the moment he was born. First he was diagnosed with a serious heart defect (Tetralogy of Fallot), then we learned about his Alagille Syndrome. It affects his cardiovascular system, eyes, and kidneys. It is the source of cholestosis - a condition that causes itchiness, jaundice, and enlargement of the liver. It cannot be treated and the only thing that can help is a liver transplant but he has to survive a failing heart first. The hospital is our second home. Fabian spends here more time than in his actual home. He only met his older sisters after he turned three months old...
I can't tell you how many times we were told it is over, that there is nothing left to do anymore. There are no words to describe the pain it brings to a parent, hearing those words. Our child is in a fight for his life.He survived the things that he was not supposed to, he made it through dozens of treatments and always came out on top. But then after a few moments of calm his condition always deteriorated and we found ourselves back at the hospital. We live in constant fear but what is worse is the helplessness - there's nothing you can do to ease your child's pain.
The only hope is waiting for him in the US. If we can raise the money to cover the costs, our son will get a heart surgery and that will open the door for a liver transplant. But his liver condition is getting worse. If liver cirrhosis occurs and his heart is not fixed our chances will be gone. We are begging you, our one and only hope - please, help us save our son’s life. We will not give up as long as he will be fighting. And our son wants to live.