Fundraiser finished
Filip Maciejewicz - main photo

3-year-old Filip has numerous TUMORS in his head and kidneys! Help!

Fundraiser goal: Non-refundable treatment at the German clinic

Fundraiser organizer:
Filip Maciejewicz, 5 years old
Inowrocław, kujawsko-pomorskie
Tuberous sclerosis complex, symptomatic epilepsy, polycystic kidney disease, atypical autism
Starts on: 5 August 2024
Ends on: 31 December 2024
PLN 253,535(101.26%)
Donated by 4513 people

Pledge 1.5% of tax

KRS0000396361
Purpose of 1.5% of tax0619619 Filip

Fundraiser goal: Non-refundable treatment at the German clinic

Fundraiser organizer:
Filip Maciejewicz, 5 years old
Inowrocław, kujawsko-pomorskie
Tuberous sclerosis complex, symptomatic epilepsy, polycystic kidney disease, atypical autism
Starts on: 5 August 2024
Ends on: 31 December 2024

Fundraiser result

Kochani, dziękujemy! Na zbiórce naszego synka jest juz 100%! 💚

Rok 2024 zakończył się dla nas prawdziwym CUDEM! Udało się zakończyć zbiórkę! Otwiera to przed nami zupełnie nowe możliwości, o których wczesniej mogliśmy tylko pomarzyć.

Filip Maciejewicz

Przed Filipkiem diagnostyka w Niemczech. Mamy ogromna nadzieję, że nasz synek otrzyma tam pomoc i że w końcu dowiemy się, jak go leczyć.

Dziękujemy za Wasze wsparcie i zaangażowanie – bez Was by się nie udało! 💚

Rodzice

Fundraiser description

Our only son suffers every day! The disease is taking away everything from him. Filip does not develop like other children. The tumors in his head cause constant seizures, and we cannot do anything to stop them! We are begging you for support! We must help him as soon as possible! 

For several years, our life has been a constant battle for our child's health. 

When my wife got pregnant, we were over the moon! Unfortunately, in the 37th week of gestation, during the prenatal ultrasound, the OBGYN diagnosed our son with polycystic kidney disease! 

The worst was yet to come, though. Right after Filip's birth, the doctor found a tumor on his heart, and our son had to be transported to the cardiac care unit. We were scared to death! The poor examination results made the doctors suspect tuberous sclerosis complex - a disease we have never heard of before. 

We traveled to a specialized clinic in Warsaw, where Filip underwent an MRI scan. Its results made us go weak at the knees. The suspected diagnosis was confirmed - our little son had numerous tumors in his head! 

Now, we visit the Warsaw clinic regularly to monitor Filip's kidneys. Polycystic kidney disease has caused Filip's hypertension. Unfortunately, there are also countless tumors in Filip's head, and at every doctor's appointment, we learn they get bigger! Their large amount and size have also caused epilepsy. Every day, Filip suffers from multiple seizures that hinder his development! 

We've tried everything to stop the disease. Two years ago, we put Filip on a ketogenic diet combined with medications, but the seizures still haven't stopped. 

We are exhausted and helpless. Our reality is a constant battle. Filip doesn't speak or communicate with us. When he was diagnosed with autism, we couldn't believe it. It's hard to accept what happened to our son!

The most heartbreaking is the lack of improvement in Filip's health condition. However, we were advised to visit a clinic in Germany. After we sent them Filip's medical documentation, we got approved for diagnostics! Unfortunately, its cost estimate exceeds 50,000 euros!

We won't be able to collect this kind of money ourselves!

Although our son is already 3 years old, caring for him resembles caring for a newborn. Every 3 hours, we feed him weighed food portions. There is also a lack of communication between us. We pin our hopes on treatment in Germany, though. We believe that detailed diagnostics will give us an explanation of why Filip is having seizures. We must use every possible method to find this out! We are begging you - please help us fight for our son!

The parents 

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    Wszystkiego najlepszego Filipku!

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    Biedny Śliczny Aniołku zdrówka ❤️❤️

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