Filip fought for his life, and now we're fighting for his fitness!

A child's healthy development and happiness is every parent's wish.
For us, fate has decided otherwise.

Filip was born with complex craniosynostosis, a disorder in which the fibrous joints between the bones of a baby's skull (cranial sutures) close prematurely. It results in developmental delay and a misshapen head.

At two years of age, our son underwent a life-saving open surgery to reshape the skull. Despite the procedure, our son still cannot speak or express his needs by pointing at objects. He is unable to perform tasks when asked and wakes up at night.

Filip has also been diagnosed with cognitive impairment, intellectual disability, sensory integration disorder, short stature, gastrointestinal disorders, epilepsy, and decreased muscle tone.

It is heartbreaking that a three-year-old boy already has such a comprehensive medical record. Sadly, the doctors have discovered new disorders. The genetic tests revealed a rare TLK2 mutation associated with MRD57 - a neurodevelopmental disorder.

Our little son requires around-the-clock care, support with daily basic activities, and also expensive specialized and intense physical therapy. Since the insurance-covered rehabilitation is not enough, we pay for extra therapy from our pockets.

Transportation, doctor's appointments, rehabilitation, and medical examinations cost a lot. Although we didn't want to ask for support at first - now we have to - Filip's health and future are at stake. Thank you so much for every donation!

Grateful parents