Let's save Halszka life.

One quick look is enough to see how much our daughter needs help. And we ask you for this help. Halszka was born less than six months ago with a very rare genetic disease (Crouzon syndrome / Pfeiffer syndrome). In a nutshell: too early suturing of the cranial sutures results in a lack of space for the developing brain. To save our daughter, we must operate her head as quickly as possible. Unfortunately, we have not found any adequate care in Poland, therefore, we are collecting funds for treatment in Germany. We have very little time, because the operation is already in the middle of January…

Halszka was born on June 29, 2018. During her prenatal tests she was diagnosed with a heart defect, which is why we were waiting for this day in great tension. We did not know what to expect and how serious her illness would turn out to be. After giving birth, we had a half an hour to enjoy our new born daughter, but it came to light that her heart defect is not our only worry. The doctor noticed facial dysmorphic features in the baby. She was taken in the Intensive Care Unit (ICU) ...

When Halszka landed in Intensive Care Unit, for the first time we feared for the life of this tiny creature. We would like to take her in our arms, hug her, protect against all dangers ... We look at our daughter with red eyes from tears, and she lies there lonely, in a hospital bed, under the care of electronic angels with a thousand tubes and wires.

Four long days and nights, every doctor visit, every examination we waited in suspense.  We waited on pins and needles. We anticipated the news by reading the doctor's face. Is it good news or bad news? It took 4 days to stabilize the situation, but not when it comes to the the syndrome...

After leaving the hospital, we started a journey in search of a specialist who will tell us how we can save our child. We have traveled all the way across Poland. We have had dozens of consultations. Unfortunately no one has presented us with an idea on how to help Halszka.  Simply speaking, her brain does not fit in her skull.

We want to do what is best for our daughter, giving her the best professional care possible. Otherwise, the conscience will not let us calm down, we will not sleep at night. We know that the illness that affected Halszka is serious. There is no place for rehearsals, experiments, we were fortunate to have found specialists that can help us in Germany.

It was the most difficult decision ... We wanted to heal her in Poland, but what we saw in our western neighbors is a completely different world. Capabilities, experience, patient approach and, above all, a clear idea of how to help Halszka. In Poland, one operation per year was mentioned for the next few years. German specialists have planned 2 operations for the next year, and subsequent ones only after her 7th birthday, which considerably minimizes the number of treatments.

They are already waiting for us. Halszka's first operation is to take place on January 23 2019, another in mid-2019, when Halska turns one. We must save the daughter's life and health. Her eyesight is at risk (optic nerve atrophy and exophthalmos caused by shallow orbits), hearing (mixed hearing loss - we need 2 devices for bone conduction), breathing and food intake. We have very little time, so please help.

Agnieszka - Halszka's mum