What happened this year in March will always remain with us. That month snatched normal life away from us and pushed to hell. Our today`s reality exceeds our worst nightmares. Our little daughter is fighting one of the most severe children’s cancers. Hania was diagnosed with Stage IV Neuroblastoma, a cancer that slowly kills her day after day. Half of the children who are diagnosed with this terrible disease lose...
We are pushed against the wall since the treatment Hania received has not brought the intended results. We need to administer a very expensive drug that increases the chances of saving Hania. The cost of this drug is close to 300,000zl (US $75,500) How did it begin? Hania was under cold. After the infection she could not recover, she would sleep for days and would not eat or drink. Her favourite place was a stroller or the parents` lap.
Concerned about her health, we went from doctor to doctor, every time hearing a different diagnosis and getting new prescriptions for medication that did not help. By mid-March, my distress was so serious that I decided to take Hania to the ER. First, the doctor said that he would not accept us, because we came without a referral. Therefore, we asked them to issue an official denial that they will not accept us. I also asked for a number to the head of the ward, who immediately said that we should get registered and he would come down to accept us in a moment. It was 8 p.m. After 11 p.m. we already received a preliminary diagnosis. Tumor in the area of the left kidney – probably neuroblastoma.
Shock! Our world collapsed and shattered into pieces. The main tumor is located in the area of the left adrenals, but the roots of the tumor are located in the spinal sympathetic ganglia. In addition, numerous metastases: to the bones of the skull, eye sockets, lymph nodes in the abdomen, pelvis, bone and bone marrow. Due to one of the nodules being opressed, Hania`s eye began to detach from the eyelet, which is quite a big handicap as it means serious sight issues.
After two doses of chemotherapy, we had a big improvement; the tumor in the abdomen decreased, the eyelet lowered, and Hania began to spend more and more time with her mom instead of constantly sleeping. We thought the worst was behind us. Further chemotherapy was supposed to clear the battlefield – unfortunately, it never happened. From the recent tomography after 8 cycles of chemiotherapy that Hania had received, we found out that they brought practically no effect. The primary tumor decreased by only a few millimeters, whereas the expectation was to decrease it by 50% (about 4-5 cm). Numerous metastases, which were in the bones still remain there. The marrow is overtaken by cancer cells. Treatment did not only stop the development of the disease, but did not work at all medicinally. Her time is running out.
Hania from the beginning of the disease amazes everyone with the strength of battle. Despite the heavy drugs flowing through her tiny body, there is a smile on her face every day. On April 6, Hania celebrated her second birthday in hospital. This is not a suitable place to celebrate your birthday, especially when you are so sick. We tried to hide tears and enjoyed her little holiday. Hania`s return home is awaited by Leon, her 4 year-old brother, who does not understand why his beloved sister and mommy have been in a hospital for so long. He doesn't understand why Hania can't just play with him every day. He doesn't understand that his little sister is now fighting the most important fight, and if she wins, she will be the greatest hero. We need to implement the expensive drug, which is a last rescue for Hania.
We very much believe that doctors will do everything in their power to save our greatest treasure – our child. We also believe that we can count on help from each of you. Without your help, we will not be able to provide Hania with the necessary treatment. We beg you for help. Thank you and bless you and your family. - A Mother