Help for our little boy
The money box was created on the initiative of the Organizer who is responsible for its content.
Two weeks ago, Jas was diagnosed with SMA. Jas, up to a year he was developing properly, just like his twin brother, but after a year it started to worry us that despite the fact that he sits down and crawls on his own, he does not make any attempts to get up. Everyone told us that Jasiek still had time, because each child was developing at his own pace, but it did not give us peace and we decided to go to a neurologist who found no knee reflex and referred us for SMA tests. Unfortunately, on October 13 doctors diagnosed SMA
Since diagnosis, the disease has accelerated. Jas is not even crawling anymore.
Jas, qualifies only for treatment with the reimbursed drug, the first three doses of which are given every two weeks in the lumbar region, then the fourth in a month, then every 4 months, and so on for the rest of his life. There is a chance for Jan to save pain by taking gene therapy, which is administered only once, but it is very expensive and, unfortunately, without the help of people with good hearts, parents are not able to finance the treatment.
We have extremely little time - to the upper limit at which the drug can be administered (13.5 kg), John is only 1.5 kg away! This fundraiser is actually a race against time for little Jas's life!
All funds accumulated in the money box were transferred
directly to the target fundraiser:
Pledge 1.5% of tax
Pledge 1.5% of tax
Two weeks ago, Jas was diagnosed with SMA. Jas, up to a year he was developing properly, just like his twin brother, but after a year it started to worry us that despite the fact that he sits down and crawls on his own, he does not make any attempts to get up. Everyone told us that Jasiek still had time, because each child was developing at his own pace, but it did not give us peace and we decided to go to a neurologist who found no knee reflex and referred us for SMA tests. Unfortunately, on October 13 doctors diagnosed SMA
Since diagnosis, the disease has accelerated. Jas is not even crawling anymore.
Jas, qualifies only for treatment with the reimbursed drug, the first three doses of which are given every two weeks in the lumbar region, then the fourth in a month, then every 4 months, and so on for the rest of his life. There is a chance for Jan to save pain by taking gene therapy, which is administered only once, but it is very expensive and, unfortunately, without the help of people with good hearts, parents are not able to finance the treatment.
We have extremely little time - to the upper limit at which the drug can be administered (13.5 kg), John is only 1.5 kg away! This fundraiser is actually a race against time for little Jas's life!