Help baby Julia to fight SMA
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Julia is 4 months old. She’s an angel that just entered this word and already received “life sentence’” with SMA diagnosis.
Please help her .EVERY LITTLE HELP MATTERS. Give her parents a hope.
Julia comes from my home town in Poland. She’s been diagnosed with Spinal muscular atrophy (SMA
SMA is a genetic condition that causes muscle weakness and atrophy (when muscles get smaller). SMA can affect a child's ability to crawl, walk, sit up, and control head movements.
There are four types of SMA. Julia is type 1 and the only chance to live is the treatment with the Zolgensma (onasemnogene abeparvovec-xioi), the first gene therapy approved to treat children less than two years of age with spinal muscular atrophy (SMA), the most severe form of SMA and a leading genetic cause of infant mortality.
Please don’t turn away. You have two hands. One to help yourself, the second
to help others.
All funds accumulated in the money box are transferred
directly to the Beneficiary's account:
Pledge 1.5% of tax
Pledge 1.5% of tax
Julia is 4 months old. She’s an angel that just entered this word and already received “life sentence’” with SMA diagnosis.
Please help her .EVERY LITTLE HELP MATTERS. Give her parents a hope.
Julia comes from my home town in Poland. She’s been diagnosed with Spinal muscular atrophy (SMA
SMA is a genetic condition that causes muscle weakness and atrophy (when muscles get smaller). SMA can affect a child's ability to crawl, walk, sit up, and control head movements.
There are four types of SMA. Julia is type 1 and the only chance to live is the treatment with the Zolgensma (onasemnogene abeparvovec-xioi), the first gene therapy approved to treat children less than two years of age with spinal muscular atrophy (SMA), the most severe form of SMA and a leading genetic cause of infant mortality.
Please don’t turn away. You have two hands. One to help yourself, the second
to help others.
