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So that I could have straight legs like my white cane - we are saving Kuba's efficiency. It’s time ONLY until 20th of October.

Jakub Karczewski

So that I could have straight legs like my white cane - we are saving Kuba's efficiency. It’s time ONLY until 20th of October.

Donate via text

to 75365
Text 0137935
6,15 zł (including VAT)
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Fundraiser goal:

operacja wydłużania nogi w European Paley Institute - II etap leczenia

Fundraiser organiser: Fundacja Siepomaga
Jakub Karczewski, 18 years old
Świecie, kujawsko-pomorskie
Asperger’s syndrome, Jeune syndrome, kidney transplant, amblyopia
Starts on: 24 November 2021
Ends on: 12 August 2022

Previous fundraisers:

Jakub Karczewski
147 061,65 zł ( 49.93% )
1355 donors
30.06.2021 - 24.11.2021

multilevel osteotomy of the shinbone at the Paley European Institute.

147 061,65 zł ( 49.93% )

multilevel osteotomy of the shinbone at the Paley European Institute.

Fundraiser description

Kuba needs urgent surgery! The story of his short life can be shared by several adults ... Kuba lives in the dark - he hardly sees, he has had a kidney transplant, his legs refuse to obey him ... The clinic is waiting for funds until 20th of October ... We ask you to mobilize and support!

Read Kuba's story:

Hi ;-)

I am Kuba - a 17-year-old with a head full of dreams ... Apparently only 17 years old, but I have experienced a lot in my life. I was born - as it is written - to be a healthy baby weighing almost 4.5 kilos. I was also tall - 61 centimeters.

With the passage of time, however - as they say, "the farther into the forest" - the more doctors found something for me ... I had not finished a year yet, and we already knew (I might not, but my Parents did) that I could hardly see...

Two days before my third birthday, they put in a dialysis catheter - because my kidneys refused to cooperate ... The only solution was a transplant. Three months after my fourth birthday, I got a kidney - from my Mother - I was very lucky.

Shortly after the transplant - the doctors added Asperger’s syndrome to the "list of talents" of my body :-) After collecting the above all - geneticists added their proverbial 3 cents - Jeune syndrome was confirmed - chest dysplasia. And so one folding with the other - my legs could not handle it :-(

Jakub Karczewski

Many doctors looked at them, made diagnoses and proposed treatment (one even ordered me to buy a dog - in the sense that when I run, I will lose weight and maybe legs will straighten themselves). However, it always ended with one thing - let's leave it while I'm still walking. Eventually there was a chance to put an external braces on the legs to straighten and lengthen them, but there was also "but" ...

I am transplanted, taking anti-rejection medicines and steroids. Unfortunately, steroids in open wounds, such as with external devices that stretch the bones, are a high risk of bone inflammation for me :-( The question, more importantly - the kidney or the legs?

And so my mother dragged me from doctor to doctor, from office to office, until we ended up at the Paley European Institute in Warsaw. After consulting Doctor Paley, I learned that my legs have a chance to be straight and even :-) Straightening without braces, but with a "sharp cut", as the Doctor said - that is thanks to surgery - and then lengthening the left leg using a special periosteal nail. Two operations are waiting for me, but there is hope that I will finally stand on my legs so that my knees do not hit each other :-)

And of course, as it always happens - "BUT" appears in my life ... So the COST ESTIMATE, in the case of the first operation, worth almost 300,000 zlotys ... Additionally, commuting to Warsaw and living there for almost two months ... It's a lot ...

I will fight bravely, but please help me collect the money so that I can have straight legs like my white cane :-)

Kuba with his parents

You can also help Kuba by participating in the BIDDINGS – CLICK (LICYTACJE – KLIK)

Donate via text

to 75365
Text 0137935
6,15 zł (including VAT)
Donate via text now

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