We need 15 MILLION to stop the DEADLY disease! HELP!

Duchenne muscular dystrophy. One might think it's just one of the medical conditions. For us, there is more to it. It means that our beloved son's life is in danger, and we have started a race against time to rescue him. The disease is characterized by progressive muscle degeneration, which has tragic consequences. It can be prevented, though! All that stands in our way is money - the expensive treatment costs 15 million zlotys. We, as parents, will do everything for our children, but we need your support. Please help our brave little Jaś!

When you look at our son, on the surface, he seems happy and healthy. Unfortunately, the disease has already taken its toll on him, and the only solution is gene therapy that stops or slows down the progress of DMD. We are doing our best to let him undergo the treatment and hope we will succeed! 

Jaś was born on July 10, 2021, and received an Apgar score of 10. We were overjoyed that our family expanded - we already had a daughter, Ola. Unfortunately, we noticed he was developing at a slower pace compared to children his age. We decided to give him time, though. After all, every child is different. However, At 16 months old, he still could not walk, so we took him to the physiotherapist and neurologist. When we looked up his symptoms on the Internet, a DMD diagnosis popped up. At that time, we weren't aware that our son was already suffering from that rare disease. 

The neurologist who examined Jaś didn't notice any abnormalities, but she ordered a blood test just in case. The results made us go weak at the knees. I will never forget February 7, 2023. That's when we received a shocking diagnosis - Duchenne muscular dystrophy. Our hearts shattered. We couldn't wrap our minds around it. How was that even possible for such a tiny body to be possessed by this cruel disease? How can faulty genes be responsible for his suffering and early death?

Thankfully, we saw the light at the end of the tunnel. On June 22, 2023, the first treatment for DMD, gene therapy, which stops or slows down the progress of the disease, was approved in the United States. Although it is expensive, we believe that good-hearted people will help us raise this huge amount - 15 million zlotys. 

The earlier Jaś receives the therapy, the higher the chance of preventing the tragic consequences of DMD. We have started a race against time! Despite our initial breakdown, we have become determined and full of hope! To stop the disease, we need your help!

Jaś is fighting to maintain his fitness every day. He has developed a balance disorder and finds it difficult to walk up and down the stairs, which leads to falls. We must watch his every move - in his case, any bone fraction would be fatal. Despite that, he's a happy and energetic boy. He loves spending time with other children and playing with bricks and tractors. 

We wish his innocent childhood had lasted as long as possible. Unfortunately, the disease will soon take away all his physical abilities. We have started a difficult battle to raise an ENORMOUS amount of funds. Please help us! Every donation and share matter! Join our son's team! 

Elżbieta and Artur, the parents