My son Johny was born without ears and with closed ears canals. This is a very rare congenital malformation, a defect that no one expected and for which no one had any influence. Doctors reported the pregnancy to have no complications.
When this sweet little baby came into the world it turned out that he was not completely healthy, as the doctors initially assured us, and how we thought throughout the entire pregnancy. It was a huge shock for all of us, that instead of ears, Johny has only small folds of skin, and the ears canals were completely closed.
The question is whether Johny even hears. Is it possible that he could hear anything without ears? No one could answer this question. We only heard that despite the fact that the situation looks very serious, there is a chance, and that there is hope that he can hear something. For the next long months, we did not know the answer to this question.
The first examination for hearing loss was set two months after his birth. After receiving results, we breathed a sigh of relief for a moment, because it turned out that the middle ear is well developed, and although Johny has significant hearing loss, he is not deaf.
Johny hears nearly the same as healthy children. Unfortunately, it does not give us confidence that speech and development will proceed correctly. He uses a device to help him hear, but it’s unfortunately only a temporary solution. Johny is a happy kid who is still unaware of how different he is from other children. Like everyone, he deserves a good childhood.
The question is what can we do to not condemn our son to the surrounding silence, problems in communicating with others and discrimination in society. His only chance is surgery in Palo Alto (California, USA), the only clinic in the world that can perform surgery to open ears on young children.
A spark of hope awakened in us that our beloved Johny has a chance to get to know the fully functional world, hearing, speaking and not remembering the times when he did not have ears and hearing he was dependent on capricious equipment.
We do not want to condemn our son to silence. Johny, like everyone deserves a happy childhood. The only major obstacle on the way to giving Johny a normal life is the cost of the operation, which is 170,000 dollars! This is an abstract amount for us, but we wholeheartedly believe that thanks to your help, we will be able to collect the necessary sum and offer a normal life to Johny.
Joanna - Johny's mom