Kajtek - an unusual boy with a mysterious illness

Charity collection verified by the Siepomaga Foundation
Supported by 119 people
4,936 zł (46.39%)
To reach our goal: 5,702 zł
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Goal
Indywidualna terapia funkcjonalna

Kajtek Sosiński, 6 years

Malmö

Polymicrogyria - too-corrugated cerebral cortex causing brain damage

Started: 20 May 2020
Ends: 21 November 2020

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It's time to write another chapter of Kajtus's life story. A boy who is suffering from a mysterious illness. Stem cell therapy has brought about a great change in Kajtek's behavior and development. In March, the operation of his left leg took place. There is a great chance that Kajo will be able to run soon. Please, I can not waste the chance of its efficiency!

The birth of Kajtek was a great happiness for our family. A great surprise, in turn, about his illness. In addition, such as polymorrogyria. The too-crooked cerebral cortex did not give a chance for normal development of Kajtusia. Son does not speak, he has epilepsy, mental retardation. Diagnosis fell on me, like a bolt from the sky. The other three children are healthy, and why is Caitain not? And in addition, he suffers from a disease of which little is known. Polimikrogyria is a mystery to everyone, also for doctors. Nobody can answer the question of how Kajtek will develop. We placed great hope in stem cell therapy. We were not disappointed! Son is just in the middle of it, and you can see a significant improvement. He uses books more often, arranges puzzles, starts to cut himself. For him, these are milestones in development. We can not wait for the progress of subsequent cell applications!

Kajtek Sosiński

Now the most important thing is that my son can walk on his own. Kajtek was born with clubfoot. His every move required help from my side. My heart was breaking when Kajtek in kindergarten could not play with other children. We consulted the operation of the leg even with Dr. Paley, but we did not take this option into account at all. After a series of consultations, I managed to operate on the foot of Kajtka in Sweden. The next operation is to take place in two years. Then, Caillou will have elongated bones. Until then, the son must be rehabilitated. Only regular exercises will improve the leg and prepare it for further treatment. Kajtek very bravely endures the hardships of learning to walk. Although he can not speak, I see strength and determination in his eyes. He's learning a lot from Dad, who has been in a wheelchair for 30 years. When Kajo is tired, he gets on the cart. And then Dad is real support and model for him.

Kajtek Sosiński

Looking at Kajtek, no one would say he was sick. The eternally smiling face of an angel does not reveal the disease inside. Only sometimes, when he has an epileptic attack, his smile changes into a grimace. This is unbearable to me. Look at Kajtka in the clutches of convulsions and feel impotence. I hug him in my arms and wait for the attack to end. I do not stop at the diagnosis and I am looking for help for Kajtus all the time. In Poland, children suffering from polymorphyria can be counted on their fingers. Each one develops differently. Therefore, no one knows how the disease will progress. I really want Kajtek to be fit. I can communicate with him without words, but I stay with him practically constantly. I try to teach him contact in sign language, I show him letters. I must be prepared for anything or nothing. Perhaps the day will come when Kajtuś will start talking. I can never wait that day ...

Kajtek is unique. The only one in the world. I thank God that he appeared in our family. Every day is a challenge for us. I can not predict or plan anything. It is Kajtek who sets the rhythm of life for our whole family. I would like to go out with everyone for a walk one day. And watch Kajtuś carelessly running on the grass. I will do everything to make it happen. Your support will be invaluable to Kajtek. Because health can not be valued.

Anna, mother Kajtka

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Charity collection verified by the Siepomaga Foundation
Supported by 119 people
4,936 zł (46.39%)
To reach our goal: 5,702 zł
Donate Donate