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Klara Kukułka

Klara Kukułka, 6 years old

Donate via text

to 75365
Text 0208116
6,15 zł (including VAT)
Donate via text now

Klara Kukułka, 6 years old

Cystic fibrosis
Mielec, podkarpackie

Walka o każdy oddech! Pomóż zatrzymać mukowiscydozę!

Dzień dobry,

nazywamy się Jolanta i Kornel Kukułka. Jesteśmy rodzicami 6-cio letniej Klary. Klara urodziła się w czerwcu 2016 roku.

Klara choruje na mukowiscydozę.

Ministerstwo Zdrowia w marcu 2022 roku uruchomiło program lekowy, w którym leki terapii łączonej, do której Klara się kwalifikuje, są refun­dowane dla dzieci od 12 roku życia. Klara ma dopiero 6 lat. Dlatego musimy zakupić leki prywatnie. Zmian, które powoduje choroba, nie da się całkiem cofnąć, ale da się je zatrzymać terapią tymi rewolucyjnymi lekami. Dlatego tak kluczowy jest czas.

Istnieje również argentyński odpowiednik tych leków, który jest 5x tańszy od tych dostępnych w Europie. Mimo to nadal jest to wielka kwota, której sami nie jesteśmy w stanie zdobyć bez Waszej pomocy!

Wszystkim dobrym ludziom dziękujemy za okazane wsparcie!

Jolanta i Kornel, rodzice

__________

Good morning,

our names are Jolanta and Kornel Kukułka. We are the parents of 6-year-old Klara. Klara was born in June 2016.

Klara suffers from cystic fibrosis.

In March 2022, the Polish Ministry of Health launched a medicine program that reimburses the combined therapy, for which Klara is qualified, for children aged 12 and over. Klara is only 6 years old. Therefore, we have to purchase medicines privately which annually exceed 250 000 Euro! The changes caused by the disease cannot be completely reversed, but they can be stopped with the therapy of these revolutionary medicines. That is why time is so crucial.

There is also an Argentinian substitute of these medicines which is 5 times cheaper than those available in Europe. Nevertheless, it is still a huge amount that we are not able to get without Your help!

We would like to thank all good people for their support!

Jolanta & Kornel, parents

My finished fundraisers:

Klara Kukułka
100 302,00 zł
773 donors
07.06.2022 - 29.12.2022

Treatment and rehabilitation, travel to hospital, medical equipment

100 302,00 zł

Treatment and rehabilitation, travel to hospital, medical equipment

Donate via text

to 75365
Text 0208116
6,15 zł (including VAT)
Donate via text now

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