Hypoxia, stroke, mental and physical disability, epilepsy. My beautiful 15 year old daughter suffers from all of it, and has been suffering for years now. We are forced to live with and battle these cruel conditions on a daily basis. Finally, there is a chance to ease some of her pain, and this is why I turn to you, kind strangers and friends, in the hopes of healing my Klaudia.
Klaudia lost the chance for a happy and normal life from the moment she was born. Her health and basic functions were compromised at birth, and she continues to fight against immense obstacles every day. As a mother, I want to help her with everything I have - and if I can’t free her from the burdens of all of her conditions, then at least I want to help free her from the ravages of epilepsy - and in doing so, ease my daughter’s unfathomable pain and anguish.
Klaudia’s birth took many painful, seemingly endless hours. It was during her complicated delivery that Klaudia experienced loss of oxygen to the brain and an intraventricular hemorrhage. When I left the hospital I had no idea the gravity of Klaudia’s state. In the first few months at home, she developed at an alarmingly slow pace - she could not raise her head, could not follow toys with her eyes, or roll over, and she had trouble falling asleep. I slowly realized the extent of her injuries. The discovery that my child was not and would never be “normal” was both shocking and agonizing beyond belief.
A parent cannot prepare for something like that. Nor can they accept it. All my grand plans for my beautiful daughter - imagining how wonderful her life would be, all my dreams for her future - shattered to pieces. My heart shattered too. I tried to “glue” the pieces back, but the shards were sharp and cut me time and time again. Hours of medical consultations, painful rehabilitation sessions, and constantly looking for someone, anyone, who could and would help us.
Klaudia’s first epilepsy episode happened when she was eight months old. The seizures were torture on her small body, which was already weak. Epilepsy shows no mercy. For years we have tried to manage it as best as we could. Nothing helped, save for a ketogenic diet, which ravaged her organs, but I had learned by then, that nothing came without compromise. To prevent further bone erosion and deformities, Klaudia went through countless procedures and operations on her spine, bones, muscles. These were all painful, exhausting and costly.
After 15 years of struggle, we have come to a crossroads. Klaudia’s body is worn out. She wants to keep fighting, but it is so very painful. The seizures are now worse than before; we are forced to call an ambulance now when they strike. With every seizure she loses more brain cells, and every seizure is a giant step back from recovery and progress.
This is why I am turning to you for help. There has been extensive research and proof that stem cell transplants help rebuild brain tissue and can stave off the effects of epileptic seizures. The procedures are expensive but highly effective. It is our last hope, our greatest chance at improving Klaudia’s quality of life.
I am a single mother and will continue to help my daughter for as long as it takes, with all my strength. But I fear that one day, my strength will dwindle. The stem cell procedures and therapy are the only light in an otherwise dark, bleak tunnel. And time is running out. The first procedure costs almost $4,000 - and because I have immense faith in people’s goodness - the procedure has been scheduled for the beginning of April. It cannot happen if I cannot cover the cost. Please help us with whatever amount you can - no amount is too small and every penny will be a blessing - to help my daughter have a second chance at a better life.
Elizabeth - A Mother