ONE OF A KIND FUNDRAISER❗️ Help save Chris from deadly illness!

Updates
September 19, 2023, at 2:15 pm

A thief stole money for Chris's treatment!
We won't be able to raise the missing funds in such a short time!

When we started the biggest fundraiser in Poland for a treatment nobody had heard of before, we knew it would be a miracle to finish it.
However, as parents, we had to give it a try.
After all, our son's life was at stake!

Deep inside, we believed in a happy ending.
If the whole country learned about the life-saving gene therapy in the United States, we would somehow raise an enormous amount of money.

Three months later and four days before the fundraiser ends, we have raised less than 4% of the required funds despite our best efforts and donations from thousands of people.
We know we won't make it on time.

The gene therapy can only be administered in children under 4-5 years old, and Chris will turn 4 in two weeks.
We will fail if we continue to raise funds at such a slow pace.

The disease is in progress!
Chris is getting weaker.
He falls a lot, cries, and his legs hurt very much.

We've been trying to raise money in every possible way, e.g., by sharing our fundraiser online or collecting money with donation boxes.
One of them has been recently stolen by someone.

The thief took the box full of money for Chris's treatment!
We couldn't believe it... We were devastated!

To succeed, we need a lot of good-hearted people!
Meanwhile, an evil stood in our way. How can we go on when fate is so cruel?

We are continuously begging you to support our terminally ill son.
Hope is all we have, and it dies last!

Devastated parents

Fundraiser Description

Chris, our little son, has been sentenced to a terminal disease called Duchenne muscular dystrophy.
His muscles degenerate, and we are desperately fighting for help.
Again, we must ask you for donations - this time, for gene therapy, which can only be administered to 4-5-year-old children.
The treatment is groundbreaking but expensive - it costs over 14 million zlotys!

Muscles help us move, walk, hold, smile, talk, eat, and breathe... Everyone wants to keep them strong and efficient.
When they get weak despite your hard work, a real drama begins.
You start to lose another skill. You can no longer move, swallow, and breathe. From now on, your life depends on a wheelchair, ventilator, and G-tube. We want to do our best to prevent our son from experiencing this nightmare!

Chris was born a healthy baby boy, which was proved by a newborn physical examination. We couldn't be happier!
Unfortunately, we detected his first health issues when he turned seven months old. He stopped reaching developmental milestones - he didn't lift his head and lay still in his crib, rarely moving his arms and legs.
Despite his perfect test results, we decided to follow our intuition and have Chris undergo a genetic test, and the result was heartbreaking - Chris had Duchenne muscular dystrophy.

Why does our little son have to suffer? He's so vulnerable and innocent!
We will never make peace with that. This rare genetic disorder affects one in three thousand boys, and Chris is in the minority.

The toll the disease takes on our son is heartbreaking. Only steroids keep him alive, and every night, he wakes up screaming due to the cramps in his legs, which can only be soothed with a massage. Chris also suffers from heart disease. Every minor infection results in pneumonia because of the lack of cooperation between the muscles and his inability to cough.

Every time we take a stroll, Chris is at risk of falling. When it happens, he screams in pain. That is why we always carry a wheelchair. The steroids have also caused a delay in his growth.
He's so little, and yet he has to suffer so much!

Usually, the disease is characterized by damage to one or two exons (coding sequences), and Chris has 16 damaged exons!
Only expensive gene therapy in the United States can stop the disease.
We must ask you for help again!

We need your support to offer Chris a better life.
For the past few years, we didn't know a treatment for his disease existed, and now we must fight for it!
Our path will be long and full of obstacles, but our miracle's life is at stake!

Anna and Łukasz, the parents