Intravenous immunoglobulin (IVIG)
Ends on: 05 September 2022
Each day we learn how to live with our son’s disability. Every single day brings a challenge, but at the same, it gives us hope to improve our son’s daily living. We have great expectations for the treatment, which is expensive, but also effective. Can you support us in our fight?
Our son Jacob suffers from autism and autoimmune encephalitis (AE). His general development significantly differs from his peers. Due to overall disorders, he cannot speak, and he is dependent on us. Whoever meets him, does not notice anything suspicious. However, in reality, everything is completely different. He requires assistance with every daily activity, he is unable to voice his needs, and he cannot control his emotions. He struggles with obsessive-compulsive disorder, accompanied by involuntary body movements. He reacts to every stressful situation with aggression.
It is really hard for us to come to terms with all of that. That horrible disease is destroying his immune system, which, instead of fighting the pathogens, is destroying its healthy cells. It is taking away our son’s brain cells, and suppressing his correct development. Sometimes Jacob cannot sleep at night. Sometimes we cannot communicate with him at all… It is really painful for us, parents.
Currently, Jacob requires specialised, complex medical help, which we cannot afford. However, we have found a solution for his health improvement. A private clinic in Poland has offered him intravenous immunoglobulin treatment. However, the cost of the medication, which must be administered every 6 weeks, is 170 000 Polish zlotys. Without that therapy, Jacob’s condition might worsen.
We would like to stop the progression of the disease as soon as possible. The sooner Jacob receives the treatment, the higher is his chance to live without a disability. Unfortunately, we cannot handle the cost of treatment on our own, that is why we are asking you for help.