A fight for life or death! Kuba’s heart may stop at any time

The worst thing is that in a matter of seconds, his heart can stop forever. We were recently removed from the waiting list for a transplant. The life-saving operation has been scheduled for December. This is our last chance!

A ticking bomb... that is the best way to describe life in the shadow of a complicated heart defect. I first heard about my son's illness when I was pregnant. Tests did not show what to expect but fear completely took control over our lives. It is difficult to think rationally in such moments when you fear for the life of your unborn child every day. The operation carried out during foetal life provided us with apparent safety. Unfortunately, it was only for a moment...

When just after his birth Kubuś was taken to the NICU, I couldn't bear the thought of him being so far away. A tiny, defenceless child deprived of Mummy's tender arms... Everyone around was enjoying their little ones and I... was literally dying of fear.

Within 6 years, Kubuś underwent two major operations and over a dozen surgeries. Each of them was associated with great danger. Fear crossed all boundaries... In the meantime Kubuś had two strokes, which caused further complications and made his recovery a faraway dream for us. When I thought we had finally turned the corner, I got more tragic news - my son had been removed from the waiting list for a heart transplant due to complications and his general state of health! Suddenly the only hope for rescue was gone! It was as if Kubuś had been sentenced to death! One question kept recurring in my mind: ‘why is this happening to my child?’. And although to this day I don't know the answer, I haven’t given up in the most important fight for Kubuś! 

We have been qualified for surgery in Boston. This news was like a gift of fate for me!

After analysing the tests, the specialists prepared a treatment plan. We know that the operation will be extremely complicated, but at this point, we have no choice. We can't risk his heart stopping forever! Doctors leave no doubt - the sooner the operation is performed, the lower the risk of complications. The date has been set for December this year! Despite the queue, an exception has been made for us because Kuba's condition may deteriorate at any time and then it will be too late to react. 

A huge price has been set for the life of my child! The amount is staggering, time is running out and I have only one thing left to do: cry for help!

Kubuś is 6 years old - he cannot speak or run. He gets tired terribly quickly, so we still have to carry him in our arms or put him in a pram. Sometimes I see his longing look when he watches healthy children play... I would so much like him to have a normal life, safety and possibilities.

I would so much like to give my child a chance to live. To hold his hand and say “Son, everything will be all right”. My promise can't be a lie, because every promise I make to him could be the last one.

I beg you, please do not let death snatch my beloved child from my arms.