Rett syndrome diagnosis is like a sentence! Only treatment worth millions can save our little daughter!

Every day, we are scared – if our daughter fails to receive expensive medication, her health condition will get worse! We are begging you for help! We cannot collect this amount ourselves! 

In December 2023, our whole world collapsed. Rett syndrome is a rare genetic disorder that occurs almost exclusively in girls and is characterized by a child's sudden progressive loss of gained abilities. 

At first, our daughter seemed to develop correctly. In time, however, we noticed that instead of achieving another milestone like crawling or sitting up, all she did was creep. 

Although the doctors told us it was temporary, we decided to take matters into our own hands and started rehabilitation. It was useless, though. As we began to worry again, we had Laura tested for genetic disorders. The results made us go weak at the knees.

Our only child suffers from a ruthless disease that will eventually take away all her developmental milestones. Laura doesn't speak or communicate with us anymore. It won't change unless we start a treatment! Girls like her are called “silent angels” for a reason. The thought of not being able to hear her voice again is heartbreaking. 

Our daughter undergoes physical therapy five times a week, but despite her efforts, she still cannot sit, walk, or crawl. Although she can grab an object, she cannot hold it. We know that we might never witness Laura reach another developmental milestone. For now, she has developed seizures, which is one of the cruel symptoms of Rett syndrome. 

The only chance for our little angel's recovery is an oral solution that treats the disease by improving its signs and symptoms. Unfortunately, it is expensive - a single bottle that lasts for one week costs over 10,000 dollars! Once started, it must be continued. 

We know we ask for a lot, but we would never forgive ourselves if we didn't take action to save our beloved child! Please help our Laura!

Only you can help us raise the required amount of money! 

Laura's parents