DMD – this disease is a MONSTER❗️Save Leon’s life!

In June 2024, we learned that our son is suffering from Duchenne muscular dystrophy. After our breakdown, many sleepless nights, sheding seas (or oceans) of tears, we decided to fight. We started participating in this uneven battle in which the opponent is merciless and tough and wants to take away our son from us without asking for permission...

We are begging for help! We cannot save him on our own!

The only hope to save our Leon and stop DMD is gene therapy. There is a chance – this is good news. The other one is bad – the costs of the medicine, its administration and tests conducted in a hospital in the USA is over 16 million zlotys!

The amount is enormous and there is not much time. Each day, the disease is taking away our son. For this reason, beside the enormous amount that we have to raise, we are also fighting against time. The sooner Leon receives the medicine, the less the disease affects his body. 

Currently, Leon is under care of many specialists: neurologist, cardiologist, pulmonologist, dietician, orthopaedist, speech therapist, physiotherapist. Each day, he undergoes rehabilitation, goes to the swimming pool, has physical therapy, works in order to maintain and strengthen muscles, periodically sees a speech therapist, dietician and other specialists. However, it will be to no avail if he does not receive treatment in time. Only gene therapy can save his life.

In the case of people suffering from DMD, at first there is a problem with legs and pelvic girdle as they become so weak that the child is not able to move and a wheelchair is necessary. Then, the muscles in hands, shoulder girdle and paraspinal muscles start deteriorating which leads to paresis, and as a consequence, to physical impairment. The DMD monster does not stop...In the next stage it takes away the chest muscles, muscles responsible for breathing and the cardiac muscle.

It means only one thing – death. 

We cannot turn away from Leon and watch him suffer terribly, on a ventilator and then die slowly and painfully. It is not easy to ask for help but every parent faced with the same circumstances would look for help everywhere. That is why we are asking you – join Lolek’s Team.

For sharing the fundraiser, each donation, prayer and good word, we thank you from the bottom of our hearts.

Leon’s Parents.