Liwiana Potrykus - main photo

Little Liwiana suffers from a rare genetic disorder! Help!

Fundraiser goal: Rehabilitation camps, treatment, and rehabilitation

Fundraiser organizer:
Liwiana Potrykus, 8 years old
Borcz, pomorskie
CASK gene disorder, neurological disorders
Starts on: 10 September 2024
Ends on: 15 March 2026
PLN 8,765(29.42%)
Still needed: PLN 21,023
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Phone number
75365
Text
0644153
Cost PLN 6.15 gross (including VAT)
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Purpose of 1.5% of tax0644153 Liwiana
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Regular support provides Liwiana a sense of security and help in a difficult situation, also after the end of the fundraiser.

Fundraiser goal: Rehabilitation camps, treatment, and rehabilitation

Fundraiser organizer:
Liwiana Potrykus, 8 years old
Borcz, pomorskie
CASK gene disorder, neurological disorders
Starts on: 10 September 2024
Ends on: 15 March 2026

Fundraiser description

My daughter is the apple of my eye and a dream that came true. I am doing my best to enable her to develop correctly, but I don't know if it's possible…

Liwiana suffers from a CASK genetic mutation, which is characterized by a lack of verbal communication skills (e.g., manifesting hunger mostly with a cry), and I can barely understand what she's trying to say. 

She also experiences walking difficulties - she cannot move unassisted. At six years old, she still cannot eat, dress, or wash herself. She doesn't communicate her physiological needs. I must help her with basic activities. At times, I feel hopeless.

If that wasn't enough, I learned that my daughter's disease is terminal. According to the latest studies, only stimulating her development and rehabilitation can improve her psychomotor functions. Although physical therapy is effective, we put greater hope in rehabilitation camps. 

During one of them, Liwianka started to walk!  Unfortunately, they are expensive, and I cannot afford them. 

All the doctors agree that in Liwianka's case, the more rehabilitation, the better! It is the only way to achieve the expected results. The battle for her health and fitness costs a lot of money, though, and if anyone would like to help me and donate, I will be forever grateful! 

Liwianka's mom

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