The disease takes away my air. Breathe in, breathe out ... quite normal for you. Not so much for myself. Each breath is important. Each is worth the sacrifice. Each ensures that I will be able to watch my son grow up...
Everything seemed to be going well. We got married not long ago and a moment later the family got bigger. You can't be happier in such moments… It all seemed too good to be true and then I faced a serious challenge - to fight the development of the disease that has been destroying my lungs over the years and step by step led to its serious failure.
I walk the straight road to death ... I am trapped! Qualification for a lung transplant is in progress but I need to wait for that in the queue. I do not know if it is going to take a year or two or maybe even longer. Currently my lung capacity is at around 20% - that's not much. The threat becomes too real for me.
Fear is also real but this is not the time to lay down your arms. Each day is of great importance when you fight for more time spent with your loved ones...
Cystic fibrosis. A disease that gradually weakens the lungs step by step ... Thick secretions accumulate in them until finally the capacity drops to the level where breathing becomes more and more challenging.
Daily rehabilitation, constant treatment and consultations with specialists help to slow it down but do not stop it. They don't make the threat go away. I was diagnosed when I was only 3 months old - the awareness of the disease and the risks associated was much lower back then. Now the disease is no longer a taboo topic.
Cystic fibrosis has always been in my life and at every stage I made difficult but conscious decisions. I chose life. I look at my wife, my son and I feel motivated to fight.
Unfortunately I will not be able to make it on my own. The medicine that can improve my condition costs a lot of money - each dose is thousands of euro! I got the first one as a gift from my parents but the following ones would be a huge expense for me. Over 1 million PLN (250 000 EUR) – this amount is completely beyond my reach and at the same time this is the only hope for me for the upcoming months. The only protection against the vision of painful death, against suffocation.
Until recently I was able to work despite my illness and managed to combine it all with my daily duties. Now the slightest regular day-to-day task requires huge efforts on my end. Even helping out to take care of a toddler is sometimes too demanding.
I feel my life is being drained out of me… I can't let that happen, I can't lose when I have to wait for a transplant. I have to hold on to life - for myself and for my family. I urgently need help! The administration of the drug cannot be interrupted and I can feel its effects after just a week!
I made up my mind and bet it all on one card. It is no shame to admit that without you I have no chance and I am doomed.
I want to live very much, I really want to wait for the transplant, I am ready to endure a lot provided that there is a chance for a life at the end of this road. The usual one where I will not run out of strength to reach for my dreams.
I know I am asking a lot but when life seems to be hanging in the balance there is no other choice. I have no time to waste! I have not written my life off and I will not give up as long as there is one spark of hope – looking at my family I know that I am fighting for the highest stake. Your help is my chance to hold my son’s hand when he takes his first steps. I want to enjoy it so much without fear of premature death ... I think you will all agree 27 is a bit early to go?