I have been waiting my whole life for this medicine. Help me get it and fight with Cystic Fibrosis!

I am 31 years old and terminally ill. I've been waiting all my life for a drug that would save me and make me stop dying slowly. Today this drug is available. Unfortunately, in our country it remains unrefunded, and I have to pay over a million PLN for a year of treatment.

One million PLN for life...

Cystic fibrosis-this is the name of the monster I fight. The disease brutally destroys the respiratory system and the internal organs. It makes a person suffocate and the failure of subsequent organs progresses. I don't have many friends with cystic fibrosis my age. Many people passed before the age of 30... I have been getting used to the death caused by this disease since I was a child... All my life I try to keep my lungs, pancreas and my whole body in the best condition possible "because when the drug appears, you must be in a good enough condition to heal you and to live like a healthy person" -that's what my mother said, so doctors said, that's what physiotherapists said and that's what I thought too.

Cystic fibrosis is an insidious disease, and even if someone like me doesn't seem sick at first glance, it doesn't mean it will always be that way. With just one infection, one bacterium and lung capacity drastically decreasing, sometimes it becomes impossible to increase, and it is a simple path to oxygen therapy and, in the future, to a life-saving transplant, which does not mean recovery. I spend hours each day healing. Inhalations, drainages, lung rehabilitation-that's my everyday life.

There are also a handful of medications-for the lungs, for the liver, for the stomach, for the pancreas, for the special vitamins, for the sinuses, for the allergy medications, for the hearing aid (damaged by other medications that saved my lungs), for the special drink supplements, but also measuring sugar several times a day, because with cystic fibrosis and pancreatic damage it caused, I got secondary diabetes.

The worst part is knowing that even with all of these, cystic fibrosis is still progressing. The next organs are more and more damaged, and I am adding more items to the list of chronic diseases that I have. I have over 50 stays in hospitals. Each day can make things worse... I've been waiting all my life for a drug that would save me. I lived to see this moment.

Unfortunately-I have not lived to the moment when I will be able to pay for it. It's cruel...

To know there is rescue but not have access to it. The drug that has appeared on the market is a causal drug-it means that although cystic fibrosis does not disappear, it does not progress, and the body begins to regenerate as much as possible. Organ damage doesn't progress. The sick are finally nourished, finally oxygenated, finally have energy to live. People who take this drug even talk about a miracle. After the first doses, the body begins to work, to get rid of secretions from the lungs! Cystic fibrosis is caused by thousands of different mutations in the CFTR gene.

Do you know how many people in the world have gene mutations like me? Six people. Imagine how lucky it is that one of the causal drugs is approved for the treatment of cystic fibrosis caused by the mutations I have. It's like I won the lottery. Will THIS drug make me live longer and the quality of my life will be much better? Definitely yes. And it is the only such possibility!

Unfortunately, to be able to be treated with this miracle drug, which stops the so far incurable, fatal disease, I need over a million PLN a year. I don't want to wait until there is nothing left to save in my lungs!

Unfortunately, the drug is not reimbursed in Poland, and my body does not have time to wait for it. I don't have time for this! To live, I have to get a lot of money for rescuing. I will not do it myself, I am not able to collect that amount.

I am not even able to finance a month of treatment by myself. That is why I am asking for help with all my strength. Each day, each month of therapy with such a drug saves my life!

Magda