This dad beat cancer – now he is fighting for his son’s life❗️Please, help save Maks from DMD❗️

URGENT FUNDRAISER❗️Without your help, we will not be able to save our son...

Please, read our story and help us promote this fundraiser. We are aware that many people have the same request, however, this is our only hope and as parents, we are trying to do everything possible to save our child.

We are the parents of 8-year-old Maks. Our son is suffering from a terminal genetic disorder – Duchenne muscular dystrophy. It is a muscle disorder that causes progressive and irreversible damage to all muscles. At the age of 12, most of the patients are not able to walk on their own and the disease becomes stronger with time and damages more muscles. For our son, this means a life full of suffering and at the end, fighting for every single breath... Children with this disease do not live to adulthood...

Maksymilian is our only and longer-for child. During the entire period of pregnancy and also after birth, no test results indicated that our son may be seriously ill. We learned about his disease by accident. When Maksiu was at hospital due to infection, the standard tests were conducted and the results were concerning. Genetic tests, carried out later, confirmed this horrible diagnosis...

The information about the disease devastated us but we immediately started acting. We were looking for help in Poland but also in Italy, France and Belgium. Unfortunately, every specialist told us the same – the disease is serious, incurable, and that we can only slow its progress and fight for Maks to be mobile as long as possible. We booked appointments with specialists for Maks as well as rehabilitation sessions.

It was not easy but we have never asked for help as we were trying to cover all the costs on our own. However, we were not able to handle the situation when another tragedy happened. In 2023 Maksymilian’s father was diagnosed with cancer. Although his prognosis was not optimistic, after many months of treatment, the disease is in remission. This period had been extremely stressful, filled with fear and uncertainty, and it devoured most of our financial reserves.

Until recently, there was no effective treatment for Maks but now, gene therapy is available in the USA for DMD patients. Unfortunately, this therapy costs approximately 15M zlotys. It is difficult to even imagine this amount.  Maks has to take the most expensive medicine in the world to live.

We are not able to cover the cost of this therapy. Our story needs to reach crowds if we want to raise the necessary funds. Unfortunately, we are running out of time as Maks is already 8 years old. At the moment, only children in good physical shape are qualified for the therapy and we can see that our son is getting weaker and weaker each day...

We are trying to cling to hope that we will be able to win this race against time and save our son but we are aware that there is not much time left... And that is why we are here to ask for your help with all our heart. We know that the first fundraisers were successful. We believe that Maks will soon join the boys who received a chance to live.

We are asking everyone who is able to help to share our fundraiser. Each donation, even the slightest one or share, is very meaningful. Thank you with all our hearts for your time and your support in any form!

Anna and Robert Tocki – Maks’ Parents