The diseases took away what we loved. They made every day a challenge for us, and turned the simplest activities into great success. What is normal for others is unique for us ...
Marek is only 4 years old and his story is so long that you could write a whole book about it ...
Life has presented Marek with consecutive barriers since birth. He lives in a world of limitations, but takes up the challenge every day. For some time, however, there have been many more of them than we anticipated.
Until recently, everything had a steady rhythm - regular rehabilitation, exercises, classes with specialists. Each day was a serious struggle with the consequences of a difficult birth. As a result of severe asphyxia, hypoxic-ischemic changes and cerebral haemorrhages, Marek suffers from cerebral palsy, psychomotor retardation, and mental retardation. This long list has always been a challenge for us, but we have tried to do our best to limit the pain and symptoms of all the ailments.
Everyday life has given us a hard time on numerous occasions, but we knew that the goal is worth taking up any challenge. A few months ago, however, we had to face unexpected and terrifying events. My wife, who dedicated her entire life to the fight for Marek’s health, who with great dedication raised the three remaining children, lost the fight against cancer... She passed away, leaving us completely lost in a new reality.
At times like this, it's good to feel you're not alone. I have my children, friends and family - their support at this time is worth its weight in gold, but I am well aware that their help will not be endless. Especially that watching Marek every day I can see how much regular rehabilitation gives him. Unfortunately, the costs of classes and rehabilitation equipment are appallingly high. Neither I nor anyone around us is able to gather such sums ... On behalf of myself and my son I must ask for help. Reach out a helping hand to us. Otherwise the lack of support will be deplorable for us. Help!
Sometimes I feel like I'm alone. I feel like I have to rise to the occasion. I can't run away because what would I run away from? From my children who need me so much now? From the diseases for which there is no cure? Discovering the new reality is like treading on unknown land. I don't know where this path will lead us. All I know is that we must all be strong for each other. I know that I have to do everything to fight for the future. If you can, help me put all the puzzles back together.
Our family has been put to the test. Marek's childhood will never resemble that of his healthy peers. But if there is a chance for a glimmer of hope to avoid a part of the suffering, I must do my best to give it to him. For my son, a substitute for health is the greatest gift he can get.