Help to control a disease that will never let go! We support Marysia!

When we were able to hug Marysia for the first time, we knew that now we had everything in life. Becoming parents was a dream that had finally come true. Unfortunately, the doctors began to suspect that our daughter had congenital adrenal hyperplasia. Fortunately, this suspicion was not confirmed. This, however, did not end the journey, meeting countless specialists to determine what was wrong with our beloved daughter. After a visit to a neonatologist, and an ultrasound examination that showed cysts in the head, Marysia was taken to the hospital, where a series of tests showed that our daughter may have a brain tumor! We were terrified!

The final diagnosis, however, was prenatal stroke, left-sided paresis and psychomotor retardation. To make matters worse, genetic tests confirm neurofibromatosis. Marysia is now under the constant care of a neurologist, nephrologist, neurosurgeon, physiotherapist, speech therapist, orthopedist, ophthalmologist and oncologist. The costs of caring for Marysia are increasing, so we need to ask for help! Every zloty is important to us!

Marysia's Parents